Thesis Nurs. 1995 N249f c.2 Nash, Mary Alice Family coping with stressors produced by 1995. Family Coping with Stressors Produced by Coronary Bypass Graft Surgery by Mary Alice Nash Submitted in Partial Fulfillment of the Requirements for the Master of Science in Nursing Degree Approved by: Chairperson, Thesis Committee ~ Edinboro University of Pennsylvania Committee Member M/ fl / / Date J7 /%y Date 7 Ic3J5/9 Committee Memberj/j / D&te 0' Family Coping with Stressors Produced by Coronary Bypass Graft Surgery Mary Alice Nash ABSTRACT This study examined the coping patterns of the spouses and adult children of Coronary Bypass Graft clients during the six to twelve months following the surgical event, to determine the patterns of adaptation used during this time frame. Data were collected in a phase II cardiac rehabilitation program from a sample size of 16 spouses and 28 adult children of 16 clients who had their first coronary bypass graft surgery. Using the Family Crisis Oriented Personal Evaluation Scale (F-COPES) by McCubbin, Larsen, and Olson (1991) subjects were asked to identify from a list of coping patterns those patterns they used to cope with the stressors associated with the surgery. The findings of the study revealed that the spouses and adult children used a variety of coping patterns to deal with the stressors. Both groups utilized the Internal Coping Patterns and External Coping Patterns as identified on the F-COPES scale similarly or with near or egual frequency when dealing with the stressors during the recovery process. Both groups identified the use of ii internal resources such as having confidence in their problem-solving abilities and the ability to positively redefine the situation. External coping behaviors utilized included relying on friends, seeking information from doctors, relying on resources offered by community agencies, and turning to their religious faith to assist them in coping with the stressors of the surgery. Implications for nursing practice included the need to assess the coping patterns utilized by spouses and children during the six to twelve months following the coronary bypass graft surgery, to better understand and support family coping. iii ACKNOWLEDGEMENTS I wish to express my appreciation to Dr. Jean Weber my committee chairperson, for her patience, guidance and support during the thesis process. I want to thank the contributions of Dr. Alice Conway and Dr. Ron Renik my committee members for their valued input. To my friends and colleagues I am truly grateful for your support and understanding throughout this process. A special thanks to Margery Taylor whose contribution was to this thesis was invaluable but most of all for her friendship and reassurance during all stages of thesis development. I wish to express sincere appreciation to the families who participated in the study for their willingness to share and all the phone calls expressing encouragement. Lastly, I am forever grateful for my family, who have consistently assured and consoled me during the development of this thesis. Especially to my mom, who has given me unconditional love and encouragement throughout my entire life, I dedicate this thesis to her. iv TABLE OF CONTENTS Chapter I II III Page 1 INTRODUCTION Background of the Problem. 1 Statement of the Problem 8 Definition of Terms 10 Assumptions 11 Limitations 12 REVIEW OF THE LITERATURE Crisis Theory 16 Coping Theory 20 Family and Stress 27 Family and Coping 32 Conceptual Framework 36 METHODOLOGY 41 Setting 41 Sample 42 Instrumentation IV V 14 .45 Reliability and Validity 48 Data Collection Plan 49 Data Analysis Plan 51 PRESENTATION AND ANALYSIS OF DATA. . .56 CONCLUSION .103 Discussion . 103 v Conclusions 112 Recommendat ions 113 Implications for Nursing 114 REFERENCES 115 APPENDICES 122 Letter of Request for Double ABCX Model 123 B Letter of Permission 124 C Letter of Request for F-COPES. 125 D Letter of Permission 126 E Family Crisis Oriented Personal Scales 127 F Cover Letter 129 G Consent Form. 131 H Follow-up Cover Letter 132 I F-COPES Distribution and Mean Scores for Spouses 133 F-COPES Distribution and Mean Scores for Children 135 Percentage Distribution for Spouses 137 Percentage Distribution for Children 139 A J K L vi LIST OF TABLES Table Page 1 Internal Coping Patterns 58 2 External Coping Patterns 59 3 Mean Scores on Internal and External Coping Patterns for Families.................... 61 4 5 6 7 8 9 10 11 12 13 Percentage Distribution of Internal and External Coping Patterns of Families. . . 62 Percentage Distribution of Internal Coping Patterns Subcategories of Families. . . . 64 Percentage Distribution oF External Coping Patterns Subcategories of Families. . .65 Percentage Distribution of Internal Coping Patterns Reframing Subcategory Items for Families.................. 69 Percentage Distribution on Internal Coping Patterns Family Passivity Subcategory Items for Families. . . 71 Percentage Distribution on Internal Coping Patterns Confidence in Family Problem Solving Subcategory Items for Families...................... 72 Percentage Distribution of External Coping Patterns Friends Subcategory Items for Families................ . 75 Percentage Distribution of External Coping Patterns Neighbors Subcategory items for Families.................. . 76 Percentage Distribution of External Coping Patterns Extended Family Subcategory items for Families. . . . 78 Percentage Distribution of External Coping Patterns Church/Religious Resources Subcategory items for Families. vii . . 79 14 15 16 17 18 19 20 21 22 23 Percentage Distribution of External Coping Patterns Community Resources Subcategory items for Families. . . 81 F-COPES Mean Scores for the Spouse and Children 83 Mean Scores on Internal and External Coping Patterns of Spouses and Children .84 Percentage Distribution of Internal and External Coping Patterns of Spouses and Children 86 Internal Coping Patterns Mean Scores of Spouses and Children 87 Percentage Distribution of Internal Coping Patterns Subcategories for Spouses and Children 89 External Coping Patterns Mean Scores of Spouses and Children 91 Percentage Distribution of External Coping Patterns Subcategories for Spouses and Children 93 Coping Strategies with High Percentage of Agreement of Spouses and Children. . . . 97 Coping Strategies with High Percentage of Disagreement for Spouses and Children. . viii . 100 Chapter I INTRODUCTION Background of the Problem Every thirty-two seconds in the United States, one person suffers from some form of cardiovascular disease, making cardiovascular disease and its complications the number one cause of death in the United States (American Heart Association, 1994). It has a mortality rate equal to cancer, accidents and all other causes of death combined. According to the American Heart Association's recent statistics, nearly 1,000,000 deaths per year have resulted from cardiovascular disease, of which 53.6% were a result of a myocardial infarction (American Heart Association, 1994). As a result, recent estimates reveal 2.3 billion dollars are spent yearly for physician and nursing services, hospital and nursing home care, and prescription medicines. In addition lost productivity and anxiety regarding the future extends the stress and cost to the client (American Heart Association, 1994). Due to the high profile heart-related illnesses receive in the media, the American population is more aware of cardiovascular disease and its effects. 1 Today's 2 society is advocating a healthier life style. People are taking charge of their lives and making changes that reduce the risk factors, such as stress, associated with cardiovascular disease. Although mortality rates for cardiovascular disease are high, the rates are beginning to decline. Coronary artery disease is diagnosed earlier and treatment interventions are implemented earlier to deter the development of complications. Despite these efforts towards early recognition of risk factors and early intervention with treatment, the people of the United States continue to develop complications from the effects of cardiovascular disease. These complications may occur because of several reasons such as the presence of a concurrent or chronic disease or the client's non compliance with the medical treatment plan, just to name a few. Currently, treatment for cardiovascular disease includes both medical and surgical interventions . One goal of medical intervention is to improve blood flow through the coronary arteries, thus increasing the oxygen supply to the myocardium. Drug therapy and modifying risk factors assist in this goal. When an individual's clinical course no longer responds effectively to medical management, surgical intervention may be employed as an alternate treatment 3 modality (Canobbio, 1990). Coronary artery bypass grafting (CABG) is the surgical intervention most often performed. Surgery does not reverse the progression of coronary artery disease nor cure it. Rather the surgery is employed to treat the effects of the disease. Its success depends upon the client modifying risk factors by complying with a prescribed diet, medications, stress reduction and exercise regimes after surgery (Marshall, Peckner, and Llewellyn, 1986). Reducing risk factors following CABG surgery ensures the continued success of myocardial revascularization. However, this may demand that the client change established lifestyles. Incorporating these changes requires a great deal of support and positive reinforcement. The primary source of this needed support comes from the family of the CABG client. Family involvement in the recovery process has been shown to have a direct impact on an individual's recovery process (Motler, 1979 ) . The family is the basic unit in the human social organization. It is a complex social system providing many physical, social, emotional and psychological benefits to individuals within the family (Danielson, Hamel-Bissell, and Winstead-Fry, 1993). These interrelated individual parts are greater than the sum of 4 the parts (Burgess, 1985). The structure and process of the family are defined by this unique interaction. One of the functions of the family is to provide physical care to its members in the form of clothing, food, shelter, education, and caring for the ill (Leventhal, Leventhal, and Van Ngyugen, 1985). The family also provides interactions through which individuals develop an identity and self esteem, and establish a system of values and beliefs. These patterns of beliefs and values evolve over a period of time as family members interact with one another (Robinson, Roe, and Boys, 1987 ) . Unfortunately, in a dysfunctional or split family situation so prevalent today, it becomes more difficult for family members to fulfill these needs. As individuals go through cycles of development in their lives, so do families. With these cycles, whether it be divorce or marriage, new social, biological, and psychological challenges emerge, which the family must face as a whole. Successful transition through these cycles occurs when major tasks are confronted. time of growth and change for the entire family. This is a Change is inevitable for the family members as they continue to co-exist and to grow as a whole. Change affects each member within the family system because of the interdependent relationship. When one member of the 5 system experiences change or disruption, all within the system are affected. Illness is just one example of change or disruption within the family system. It creates stress for both the individual and the family. Illness has a unique component of promoting change in the family's established functional patterns. During this time of illness the family's stability, adaptability, resources, beliefs, and assumptions are challenged (Williams, 1974). The event may be seen as a reminder of the individual's vulnerability to illness and death. Previously defined roles may be shifted among members within the family system. can be temporary or permanent. This shift in roles If a family member is not able or willing to take on a change in role, the stress brought on by the illness is only compounded, thus predisposing the family to a crisis situation. Relationships are strained and role conflicts begin to emerge. The family must manage the hardships of the situation, maintain the family's integrity and morale, and acquire and develop resources to meet new demands. The family must create and implement a new structure within the family system to accommodate everyone's needs. A realistic balance between available resources and the demanding changes must be achieved in order for the family to continue to function. Part of this balance 6 involves the effort made by the family to manage various dimensions of family life, at the same time realizing that a perfect solution is never possible. Families learn to compromise and accept the best possible outcome. A central concept in understanding the family's struggle to manage the situation created by the illness is family adaptation. It is used to describe the outcome of family efforts to bring a new level of balance, harmony, coherence, and functioning to a family-crisis situation (Danielson, Hamel-Bissell, and Winstead-Fry 1993) . McCubbin and Patterson (1983) identified three elements of family adaptation: (1) the individual, (2) the family as a system, and (3) the community of which members are a part. all three components. Adaptation is achieving a balance of If a balance is not achieved, the family will not adapt to the situation, and a crisis state may ensue. A positive balance or bonadaptation means a positive change has been made by achieving a balance among all three components (McCubbin and Patterson, 1983). On the opposite end of the spectrum, if a family does not achieve a satisfactory level of functioning or adaptation, maladaptation occurs and a crisis may ensue (McCubbin and Patterson, 1983). To prevent the occurrence of a crisis new ways to adapt must be found. 7 Crisis is not always negative; it can be seen as a time of change, of breaking traditions and developing new ways of functioning and facilitating growth. Coronary artery disease (CAD) is an example of an illness which creates stress for individuals and their families. crisis. This stress place the family at risk for a Family support and care are needed as the individual afflicted with coronary artery disease adjusts to imposed restrictions and lifestyle changes. These necessary changes places stress on the family. The stress is compounded when the individual requires coronary artery bypass grafting surgery to treat the effects of the disease process. The family is confronted with many uncertainties and fears in relation to the surgery and possible outcomes. The family becomes fearful that the individual may die or become permanently disabled. Culturally, the heart is seen as a symbol which represents emotions, character, and psychological traits far beyond its physical function (Carnes, 1971). seen as the source of life. It is But, CABG surgery can be viewed as a threat to a family member's life. This creates a great deal of stress and conflict for family members of coronary bypass graft patients. Stress requires the family as well as the individual to respond 8 suddenly to changes in the environment, health status, locus of control and living patterns by adaptation (Rolland, 1990) . Reorganization of the family structure and its functions is a necessary goal for the family to maintain stability. To meet this goal, the family needs to apply effective coping strategies and begin to function as a unit again. Statement of the Problem Clearly, coronary artery bypass grafting surgery has a psychological impact on the client and the family which requires skilled and caring health care professionals to intervene and assist in maintaining a functional unit. Unfortunately, most hospital staff's energies are focused on meeting the needs of the client with little regard in assisting the family. A holistic approach is needed in order for health care professionals to assist both the CABG clients and their families to cope and understand the recovery phase of the surgery. To provide better care for CABG clients and their families, health care professionals need to gain a better understanding of how families struggle with the fears, misconceptions, and uncertainties of the surgery. This understanding will assist health care 9 professionals in determining whether or not an illness or health stressor will develop into a crisis for a family. Those families can be recognized early and interventions can be implemented to prevent the crisis. Thus, the family can be prepared to cope with the CABG individual in a healthy and rational manner. Purpose of the Research The purpose of this research is to study the coping patterns of families of CABG surgery clients during the six months to one year after surgery. CABG surgery may precipitate individual and family crises. The effectiveness of coping with this crisis may affect the outcome of surgery and general adaptation in both immediate and later life. Nurses need the training and time to assist people with their health-related coping patterns . If useful individual and family coping behaviors and problem-solving abilities can be identified during the recovery phase of CABG surgery, the nurse can then encourage the use of these skills to facilitate client/family coping and eventually adaptation. The results of this study will provide direction for nurses to assess, plan, implement, and evaluate interventions which will assist family members to cope and manage role 10 changes necessary in the recovery phase of the surgery experience. The following research guestions were investigated in this study: 1. What coping patterns were used by families during the six to twelve months following a family member's CABG surgery? 2. How did the adult children of CABG clients cope with the stressors of the surgery as compared to the spouses of CABG clients during the six to twelve months following the surgery? Definition of Terms The following terms were defined for this study: Bonadaptation the positive end of the continuum of family adaptation which is characterized by a balance of family functioning" (McCubbin and Patterson, 1983, p.20). Cardiovascular disease - disease of the heart and blood vessels (Clayton, 1989). Coronary Artery Bypass Graft (CABG) - a shunt established surgically which permits blood to flow from a major artery to a coronary artery at the point past the obstruction (Clayton, 1989). Coronary Artery Disease (CAD) - the disease of coronary arteries which results in sufficient narrowing of the coronary arteries. This narrowing causes inadequate blood supply to the myocardium (Clayton, 1989). Coping behaviors - "the cognitive and behavioral components wherein resources, perception, and behavioral responses interact as families try to achieve a balance in family functioning" (McCubbin and Patterson, 1983, p.16). 11 Family - a basic societal unit in which members (two or more people) have committed to nurture each other emotionally and physically (Meisel, 1991). Family Adaptation - a continuum of outcomes which reflects the family's efforts to achieve balance, harmony and coherence as well as a satisfactory level of family functioning (McCubbin and Patterson, 1983, p. 17). Family crisis - "the family's inability to restore stability and by the continuous pressure to make changes in the family structure and patterns of interaction" (McCubbin and Patterson, 1983, p.10) Lifestyle - "a pattern of living involving mental, physical, economic, recreational behaviors and health behaviors" (Hayne, 1984, p. 190). Maladaptation - negative end of the continuum of family adaptation which is characterized by an imbalance of family functioning (McCubbin, and Patterson, 1983, p. 20). Myocardial Infarction (MI) - an ischemic process which results in the development of necrosis of myocardial tissue as a result of a sudden decrease in coronary perfusion or an increase in myocardial demand without adequate coronary perfusion (Canobbio, 1990). Passivity - "inactive" or passive behaviors a family might employ (McCubbin, Olson, Larsen, 1991). Stress - "a state which arises from an actual or perceived demand-capability imbalance in the family's functioning and which is characterized by a multidimensional demand for adjustment or adaptive behavior" (McCubbin, and Patterson, 1983, p. 9). Stressor - "a life event or transition impacting upon the family unit which potentially or actually produces change in the family system" (McCubbin, and Patterson, 1983, p. 8). 12 Assumptions The following assumptions have been made in the conceptualization of this research: 1. A client's experience of and recuperation from CABG surgery may be a stressor to the client's family which may require the family to adapt in new ways. 2. Adaptation is a process which occurs over time. Adapting to stressors is best managed when interpersonal support is present. 3. The family which adapts positively to the stress of the client's CABG surgery may be a support to the client experiencing coronary bypass graft surgery. 4. Primarily, nurses assist families to adapt positively by providing support and information to CABG clients and their family members during the recovery phase of the surgery. 5. Knowledge of adaptive family behaviors will assist nurses to support and educate CABG clients and their families, thereby facilitating adaptation. 6. Scores on F-COPES are valid and reliable indicators of adaptation levels. Limitations of the Study The research study was subject to the following limitations: 1. The study was limited to families of clients who had undergone CABG for the first time, had no other serious chronic medical condition and had the surgery performed in a hospital setting in northwestern Pennsylvania. 13 2. Family members consisted of adults, 18 years or older, either living with the CABG client or living apart from the CABG client. 3. The study focused on families of CABG clients during the six to twelve months following the surgical experience. 4. Reports of coping strategies used by families were confined to those included on the F-COPES Family Crisis tool which may not elicit other strategies employed by families. 5. The results of the study limited generalization to other groups due to the size of the convenience sample and the exclusion of demographic data about the sample. 6. Participants may be inclined to give less than honest responses due to the timing of the study. Chapter II REVIEW OF THE LITERATURE Each year thousands of adults undergo coronary artery bypass graft surgeries to treat the effects of coronary artery disease and to improve the guality of life. The decision to undergo the surgery is not easily made. Clients may feel that surgery is their only hope to continue with productive lives, or they may not have a choice regrading the surgery due to the severity of coronary artery disease. Whatever the circumstances surrounding the surgical decision, the recovering client and family may experience a considerably stressful and emotional time. Fears of mortality and disability may be felt by the client and the family (Gaws-Ens, 1994). The family may be fearful of the outcome of the surgery and what changes need to be made during the recovery process. The focus of health care professionals has been to meet the needs of the client. Little time is spent on preparing the family for the surgery or addressing their concerns for the client's recovery. Families experience a great deal of anxiety due to this lack of preparedness (Gaws-Ens, 1994). An additional stressor for the family is the changes occurring in today's health care system. 14 Clients are 15 being discharged from acute health care facilities earlier, and family members are being asked to take on a more active role in the clients' recovery process in the home environment. This new role for families is often met with fearz uncertainty, and anxiety. If the family members are ill-equipped to handle this role change or if they become overwhelmed with the tasks required of them, they may be thrown into a crisis state (Dracup, 1993). It is the family's interpretation of the challenges encountered and the effectiveness of their coping mechanisms, which will determine if a family will go into a crisis state (Williams, 1974). Effective coping strategies are necessary for a family to stabilize itself and begin to function cohesively again. The family needs to function bonadaptatively, in order to provide care and support for the client recovering from CABG surgery. The support given by families to the CABG client is important to the well-being and recovery of the client (Gagilone, 1984, Artinian, 1989, Leske, 1986, Gillis, 1984). As the individual strives to regain the health previously possessed before the surgical event, the family must learn to adapt to the change in health status of that individual member. Nurses, through their frequent interactions with the 16 CABG client and families during the postoperative phase, have the opportunity to assist families and clients in coping with the stressors encountered by the surgery. By assessing the family's coping abilities, the nurse can identify any weak areas which may predispose the family to a crisis and plan strategies to enhance their coping abilities. Strengthening coping abilities of the family will assist them in meeting the challenges of the recovery and possibly preventing them from going into a crisis state. The experience may result in growth and enrichment for the family. This stdy exaimed the copin patterns of family members of coronary bypass graft clients. This chapter reviews the literature for the study by including crisis theory and coping theory and studies relating to family stress and family coping. Crisis Theory One of the pioneers in crisis theory is Gerald Caplan (Caplan, 1964). He pioneered the field of preventive psychiatry by developing a framework for understanding crisis and its development. This framework focuses on prevention and the importance of social, cultural, and material supplies to avoid crisis (Caplan, 1964). 17 Central to Caplan's theory is the prevention of a crisis state. Crisis can be prevented at each of three levels of interactions: primary, secondary and tertiary prevention (Caplan, 1964). In primary prevention, harmful forces that operate in the community are encountered, decreasing the capacity to withstand the stress. A crisis may occur if the abilities to withstand the stressor are not adequate. The focus is on the prevention of a crisis through identification of risk factors, health promotion and disease crisis prevention. This is done by modifying risk factors, strengthening coping skills, and improving problem-solving abilities. Secondary prevention includes early problem identification and initiation of prompt treatment once the problem has been identified (Caplan, 1964). The goal is to provide short-term therapy and return individuals to the community as soon as possible. Health is maintained through crisis resolution and the return to at least a precrisis level of functioning (Caplan, 1964). Tertiary prevention involves the reduction of residual effects of maladaptation or crisis. New coping patterns are developed to provide an optimum level of functioning. Resources such as long-term counseling are utilized to decrease the likelihood of further problems or reoccurrences (Caplan, 1964). 18 Caplan views the individual as living in a state of emotional equilibrium. He believes that it is the goal of the individual to always maintain that state of equilibrium (Caplan, 1964). The emotional reaction as well as the available coping resources determine whether a situation perceived as a threat will result in a crisis. This is one explanation why a crisis may result in one individual and not in another. Caplan observed that life is a succession of crisis events occurring across the life span of an individual and upsetting the equilibrium of the individual. The crisis event involves an actual or threatened loss. Caplan further states that crisis is usually self­ limiting - lasting four to six weeks and consisting of four phases (Caplan, 1964). Phase one occurs when a traumatic event or threat is encountered and anxiety levels increase. Phase two evolves when the usual problem-solving abilities fail as the stressor continues to produce tension. In phase three, the anxiety levels increase even further and the individual uses every resource available, old or new, to reduce the anxiety and to solve the problem. At this phase, the individual is most receptive to outside intervention to reduce the emotional discomfort (Caplan, 1964). The fourth phase is the state of crisis. Tension 19 and anxiety are almost at an unbearable degree while internal strengths and social support decline. The unresolved problem continues to exist (Caplan, 1964). During this time, individuals are in a transitional period marked by cognitive and emotional upset. They are psychologically vulnerable and are willing to accept help from others for solution to the crisis (Caplan, 1964). By the end of the fourth phase, the crisis may be resolved adaptively or maladaptively, depending on the coping abilities of the individual. Caplan's framework has limitations due to the influence of the medical model. Central to Caplan's theory is the concept of homeostasis or equilibrium when confronted with a stressor (Narayan and Joslin, 1980). Caplan states that when individuals are confronted with stressors, they strive to maintain a state of emotional equilibrium. The individuals' behavior is directed at reducing tension by relaxing, meeting biological needs and reestablishing a balance (socially, physiologically, and psychologically) to maintain this equilibrium (Caplan, 1964). As Narayan and Joslin (1980) point out, these concepts are more applicable in explaining physical disease processes rather than the emotional processes that occur when an individual is confronted with stressors. These concepts are rather limited by 20 definition when applied to human behavior because they do not take into account human responses such as growth, change, and creativity which emerge as a result of the event. Coping Theory Another pioneer in crisis theory is Richard Lazarus. His crisis theory on stress and coping adaptation is based on a transactional model. Transactional theorists believe that stress is the interplay between the environment and people (Lazarus and Folkman, 1984). Lazarus' belief is that people do not live in a vacuum isolated from the world, but rather they interact with the environment surrounding them (Lazarus and Folkman, 1984) . He believes that individuals are constantly appraising their environment to understand the significance of what is occurring in the environment. He also believes cognitive appraisal and self regulation processes affect individuals reactions to stressful transactions. These processes shape the somatic outcome. Humans cognitively appraise threatening situations to evaluate the meaning of a harm-producing stimulus and take inventory of their counter-harm resources (Lazarus and Folkman, 1984). 21 Lazarus defines stress as the cognitive appraisal that occurs when the relationship between the environment and the individuals is thought to be taxing or exceeding resources and endangering the individuals' well being (Lazarus and Folkman, 1984). In his opinion, stress is not a stimulus, a response, or an intervening variable; but a term that includes an individual's psychological, sociological, and physiological functioning (Engel,1991). Coping is viewed as a cognitive, dynamic process during which the individual interacts with the environment. The individual's cognitive and behavioral efforts are directed at reducing, mastering, minimizing, or tolerating what has been appraised as stressful. Coping is viewed as the attempt to manage the demands of a person-environment transaction. Two classes of coping are identified, problem- focused and emotion-focused (Lazarus and Folkman, 1984). Problem-focused coping deals with the direct action taken to eliminate or alter the threat through aggressive or rational deliberate actions. This type of coping is more frequently used in situations thought to be changeable. Emotion-focused coping deals with the regulation of emotional tendencies such as distancing, seeking social support, wishful thinking, escape avoidance, accepting responsibility and positivism (Lazarus and Folkman, 22 1984). Emotions are the product of the individual's transaction with the environment. The intensity of an individual's emotional responses offers insight into how the individual is managing the threat and offers a view of what the individual evaluates as important (Folkman and Lazarus, 1985). Emotion-focused coping is used most frequently in encounters thought to be unchangeable (Lazarus and Folkman, 1984). Lazarus believes illness is an expression of repeated or persistent forms of adaptive encounters with the environment. Although this definition does not clearly state the relationship between stress and illness, it does give insight into why individuals continuously appraise their situations and regulate their behavior. Meaning is given to the illness as a result of cognitive appraisal. The illness may take on the following meaning to the sufferer: a challenge, an enemy, a punishment, a weakness, a relief from burdens, or an irreplaceable loss. Individuals can cope with illness in many ways. The illness may be minimized or denied or it may be tackled with vigilance (Norris, et al., 1987). Yet, the full meaning of the illness can not be fully absorbed by the individuals because it is too traumatic. Many details 23 are missed even after repeated explanations. According to Lazarus, this allows the individuals to regulate the enormously painful emotions that may be evoked if the individual is fully aware of the situation (Lazarus and Folkman, 1984). The individual is not deliberately denying the situation; rather the individual can not permit himself to see all that is surrounding him. Lazarus' theory of stress and coping has been used as a framework guide for many studies. His theory of how individuals cognitively appraise threatening situations to determine whether they are harmful or not gives insight to understanding how individuals react to stressful situations. The view of coping as a dynamic process gives a different perspective into the coping strategies people choose to deal with the event. This view of coping identifies what concerns people have and what their emotional response is over a period of time (Lazarus and Folkman, 1984). Folkman and Lazarus (1985) applied this theory in their study of college students taking midterm exams. They noted that the students prepared for the exam not knowing what the exam was going to be like or what the outcome was going to be. anticipate the end result. The students could only During this time, the students utilized a range of personality characteristics 24 (such as - values, commitment, goals, and beliefs about oneself and the world) to prepare for the exam. These characteristics determined the magnitude and potential cost or benefit of the exam to the individual (Folkman and Lazarus, 1985). This study demonstrates the dynamic process of coping with various emotions, the range of coping strategies, and the use of social support which did not remain stagnant (Folkman and Lazarus, 1985). Raleigh, Lepczyk, and Rowley (1990) used Lazarus' theory to explore the knowledge and anxiety of significant others of cardiac surgical candidates preparing for surgery. In the preoperative phase, families were more anxious and expressed feelings of helplessness more than the candidates themselves did. It was reasoned that this difference was due to the families' sense of lack of control over the event. According to Lazarus, this feeling of helplessness or lack of control may be appraised as a harm-producing stimulus because of the anticipated negative outcomes of the surgery. Clients, on the other hand, had some control over the situation because they chose to have the surgery or not. It was also noted that during the preoperative phase, support from all sources was given to clients with little to none given to the family. This influx of support made it possible for the client to call 25 upon a variety of coping resources such as the use of denial or avoidance as a means of coping to minimize the threat of the impending surgery (Raleigh, Lepczyk, and Rowley, 1990) . King (1985) used Lazarus' theory in her study of measuring coping strategies, concerns, and environmental responses in clients undergoing CABG surgery. She developed a questionnaire based on Lazarus' concepts which grouped coping strategies into categories: information seeking, direct action, turning to others, avoidance, imaging and positive thinking. King came to similar conclusions as Lazarus - coping is a dynamic process. She observed that coping strategies changed from the preoperative period to the postoperative period. In the preoperative phase, information seeking was used more as a method of coping with the uncertainties of the surgery; while in the postoperative phase, information seeking was utilized by the clients to compare their recovery progress with others. King (1985) noted that direct-action coping strategies were the lowest during the preoperative phase and highest in the postoperative phase. She theorized that the reasoning behind this difference was that the preoperative clients did not perceive that any specific actions were available to address the threats and dangers 26 of having surgery. In the postoperative phase, the clients could take specific actions which would aid in their recovery. The findings suggested that direct actions were dependent on the situation and the appropriateness of participation. King also concluded that if the outcome of the event was clear then the level of concern would decrease. On the other hand, if the outcome was ambiguous, ramification of the experience was uncertain and the level of concern would remain high. She felt that further research was needed to gain an understanding about the relationship between coping strategies, concerns, emotional states, and outcomes that can be used for client in the clinical practice. O'Keefe and Gillis (1988) also used Lazarus' framework of coping to present a case study of a client and family as they faced a life-threatening cardiac event. The framework evaluated the success of interventions with the family. Family coping and stress were dependent on how the situation was interpreted by individual members, what degree of threat to well-being was involved and whether needed resources were available. Many family members saw the cardiac event as a threat and appraised the situation as a potential loss. The more intense people's commitments were, the greater the 27 potential for appraisals of threat. This appraisal of threat was evident in Hopkins' (1994) study of families of trauma victims. The families were faced with much stress and used a variety of coping mechanisms at various phases of the trauma victims' hospitalization. Coping mechanisms were identified and grouped according to Lazarus' coping categories of emotional-focused and problem-focused strategies. During the early phase of hospitalization and during the clients' acute medical phase, emotional-focused coping was identified. Families used denial, displacement of anger, self-pity as well as blame, or blame on others as means of coping. In the later stages of hospitalization, problem-focused coping responses were employed by the families such as researching the clients' diagnoses and prognoses to gain a better understanding of the clients' health status (Hopkins, 1994). Family and Stress As previously stated, all members of the family are interdependent. Each member is an integral part of a whole, having a place and role within the family structure. When one member becomes ill, all are affected and the stress of caring for the ill member is felt by 28 everyone. During the phases of CABG surgery and the recovery process, the family members and the client are faced with much stress. Fear is experienced by the family due to the lack of control over the events and the uncertainty of the outcome. Stressors pile up, placing greater demands on the family's coping abilities. Dracup, Meleis, Baker, and Edelfsen (1984) noted that increased anxiety contributed to the emotional and behavioral changes among married couples when a member experienced coronary bypass graft surgery or myocardial infarction. Anxiety, depression, and low self-esteem were consistently documented during the crisis event. These emotions persisted for up to one year following the event. Millar (1989) studied families of critically ill patients in an intensive care unit. The intensive care unit is a strange, unfamiliar environment in which the family may have experienced fear of the unknown, anger, mistrust, helplessness or hopelessness. Many of these emotions were due to the lack of understanding of the relatives' diagnosis and hospital routines. Millar explained that clients entering an ICU are in a biological crisis whereas the family is in a psychological crisis. The relationship the clients had 29 with them was not static or isolated because of the admission to the ICU, but continued to be dynamic and ongoing. She found that families have a direct effect on clients7 emotional states. By getting them involved in family-focused care programs, the anxieties were reduced and the stability of family structure was maintained (Millar, 1989). Hodovanic, Readon, Reese, and Hedges (1984) identified several stressors that affected families of medical intensive care unit clients. Several of the stressors identified were role changes, isolation from other family members, financial concerns, fear of loss of a loved one, and possible emotional turmoil when family members were hospitalized. Supplying the family with information regarding clients' conditions, procedures to be performed and discharge instructions, decreased family's anxieties, thus enabling them to effectively cope with the situation (Hodovanic, Readon, Reese, & Hedges, 1984) . Artinian's (1989) study of family members' perceptions of the cardiac surgery event concluded that the family was threatened by the surgical experience. The family feared the loss of a member which drastically threatened to alter the makeup of an intact family system. To maintain family integrity, communication was 30 an essential component. Family members needed encouragement to express emotions and fears. The study concluded that nurses needed to be more sensitive to the family's needs and concerns and answer all questions even if they were repeated over and over again. In addition, Artinian found that the cardiac surgery event was more stressful for the spouse than for adult children due to the added responsibilities placed on the spouse during the event. The children did not experience the direct effects of the surgery, since most did not reside in the home of the client (Artinian, 1989). Artinian also pointed out that being in group sessions with other CAB families facilitated client and family coping (Artinian, 1989) . Dhooper's (1983) study of families of myocardial infarction clients revealed the vulnerability of families during high stressful episodes. The emotional health of families was the most vulnerable characteristic throughout the crisis period and the six months following the event. Dhooper (1983) reported that spouses had an increase in anxiety which he believed caused behavioral changes within the family, disruption of family routines and deferred participation in social activities. Gillis (1984) found that clients hospitalized for coronary bypass graft surgery reported experiencing less 31 stress than their spouses. Their spouses identified the lack of control over hospital events, the inability to ventilate fears, and the fear of caring for the client after discharge without feeling competent to do so as major stressors. Supplying clients and spouses with information about the recovery process reduced many of the fears. Brown, Glazer, and Higgins (1983) studied the support given to open heart clients and their families during the recovery period of open heart surgery. They studied the clients and families of a support group. The support group focused on the exchange of information regarding the recovery from the surgery and the psychosocial aspect which would have otherwise gone unaddressed. The support group provided the families and clients an opportunity to ventilate their feelings, unique to the recovery of open heart surgery. The benefits of the support group revealed that stress and anxiety were reduced during the recovery process. Hickey and Lewandowski (1988), in their study of families of critically ill clients, concluded that the family plays a supportive role in the clients' recovery and should be included in the decision making process. When families took a more active role in the clients' care, anxieties were reduced for both the clients and the 32 families. Family and Coping Family coping is a complex process. It takes coordinated problem-solving behaviors of the whole system to maintain the integrity of the system when a stressor or hardship is encountered. The behaviors are directed at establishing a balance between the demands of the stressor and the available coping resources of the family. Alonzo (1986) studied the impact of family care during an acute cardiac event. The family had a positive impact on care of a client faced with a life-threatening illness. It was often a family member who made the initial contact with the physician. Alonzo (1986) also noted that the family played an active role in the client's care during an acute cardiac event. Family members provided physical care and emotional support to the client during the rehabilitation phase of recovery. Robinson, Roe, and Boys (1987) in their study of families, described stages of crisis that families progressed through when faced with a serious illness. When faced with a serious illness or crisis, the family's level of functioning dropped, relationships were strained, conflicts among members increased and role 33 ^allocations were disrupted. In the first stage, the family often paralleled that which clients were experiencing. Both the family and the clients were dependent on others, especially the medical team. They were compliant and unquestioning in their acceptance of treatments. Denial and anger were often used in this first stage much in the same manner they are used in the stages of grieving over the death of a loved one (Robinson, Roe, and Boys, 1987). In the second stage, the family members began to regain control over their lives and adapted to the illness by making improvements in family behaviors and relationships. The family's problem-solving abilities increased and a new level of functioning was achieved. In this stage, the family gradually adjusted to the illness. Flexibility and adaptability were needed for the family to withstand the tension or strain evoked by the illness. The third and final stage involved further assessment of understanding the illness and to some degree the purpose of life. This stage was not always attained (Robinson, Roe, and Boys, 1987). Cray (1989) studied families of critically ill clients and developed an assessment framework to identify and implement interventions to assist families dealing with a critical event. Cray noted that families went 34 through a grieving process as they dealt with the crisis event. Resolution occurred when the family had gone through the process and gained acceptance of the illness and its effects. Cray concluded that nurses could facilitate the process by demonstrating a conscientious concern for the family's loved ones. Bradley and Williams (1990) compared the concerns of open heart clients and their spouses during the preoperative phase. They found that the open heart clients and their spouses had multiple concerns ranging from the fear of complications, the effectiveness of the surgery, and death as a possible outcome of the event. Coping effectively with the event depended on nursing interventions directed at assisting the clients and their families in identifying and resolving their concerns. Stanley and Frantz (1988) assessed the social adjustment of spouses of patients who had undergone coronary bypass graft surgery. Many spouses expressed dissatisfaction with the decrease in social activity, role changes, sexual functioning, vigilance, and economic adequacy after the surgery. Role reversal was found to be a common thread throughout many of the studies during the rehabilitation phase of recovery. Role ambiguity led to confusion and frustration within the family unit. Stanley and Frantz concluded that educating the family 35 regarding the adjustments needed during the recovery process would prepare the family to cope more effectively with the situation. Dhooper (1983) studied families of clients who had suffered their first myocardial infarct. A variety of coping strategies were employed by family members to understand and control the stress during the event. The families welcomed outside help to assist them in dealing with this crisis, yet only a small fraction of the families knew or had utilized social agencies available to them. Nearly half of the families felt that they emerged stronger and better because of the crisis. A fifth of the families felt that they were worse off in their overall functioning. Dhooper theorized that had the families known about the availability of social services to assist them during their crisis, they would have been able to better cope and function during the crisis event (Dhooper, 1983). The literature identified a family's stability, adaptability, resources, and beliefs are challenged when confronted with a illness. A balance must be established between the stress of the illness and the family's coping abilities in order for the family to avoid a crisis situation and continue functioning. The literature supported interventions aimed at supporting the family 36 through informal or formal means to assist them in coping with stressors of the illness. Conceptual Framework The Double ABCX Model of Family Assessment and Adaptation focuses on family coping efforts to manage a stressful event or situation over time (McCubbin and Patterson, 1983). The model takes into account the family's adjustment to a stressor through the interaction with pre-crisis and post- crisis variables. Four major concepts are the foundation of the framework: demands or stressors (aA), the adaptive resources(bB), appraisal or perception of the stressors (cC), and coping strategies(xX) (McCubbin and Patterson, 1983). The aA factor refers to the family's demands or pile-up of stressors. Not only is the stressful event included in this factor but also the associated hardships, other concurrent events, and prior family strains. The demands produce internal tension on the family that require family resources (bB), the family's perception or definition of the situation (cC) and the family's coping abilities. The bB factor represents the family's adaptive resources that are needed to assist family functioning at 37 the time of stress. These resources are called upon to prevent the stressor from creating a crisis or disruption within the family functioning. Family resources include economic stability, cohesiveness, flexibility, spiritual beliefs, open communication, routines, and organization (McCubbin and Patterson, 1983). The third factor of the model (cC) represents the family's perception or definition of the event. This appraisal of the stressor by the family gives a definition of the seriousness involved, the hardships encountered, the family resources available to meet the demands, and actions needed to maintain equilibrium within the family unit. A crisis may occur due to ineffective coping mechanisms of family members and lack of social support for the family. state of disequilibrium. This causes an overall Equilibrium is maintained if family coping and appraisals meet the demands of the stressor and promote family adaptation. Coping is the fourth major concept in this model. bridges the bB and cC factors. It Coping is the interaction between the stressor and the families' capabilities to meet the demands of the stressor. interaction is adaptation (xX). The result of this Adaptation is a process in which families must come to realize the necessity of changing in order to restore their functional stability. 38 The changes include restructuring patterns of functioning, rules, and boundaries (McCubbin and Patterson, 1983). Through family effort, the changes are incorporated to improve family functioning and effectively deal with the crisis situation. bonadaptation is facilitated. Thus This balance or equilibrium enables the family to continue to function as a whole when confronted with stressors. On the other hand, families may not adapt effectively to the changes causing maladaptation or disequilibrium within the family (McCubbin and Patterson, 1983). As a result, the family will return to a crisis situation and new ways to adapt must be found. The model is used as a guide to assess critical elements of family functioning, the knowledge of which can be useful in planning family interventions during illness. A holistic and systematic approach is provided in diagnosing and evaluating family functioning as family members cope and adapt to the stressors caused by the illness experience (McCubbin and Patterson, 1983). Gillis, Neuhaus, and Hauck (1990) used the Double ABCX model as a framework to study the families of coronary bypass graft clients. The model was used to specifically identify the influences which augment the family's coping abilities and adaptation after cardiac 39 surgery. Leavitt (1990) used the Double ABCX model to study family recovery after vascular surgery. Specific areas of study included the family's perception of the stressful event and the coping strategies used to deal with the event. Application of this framework to the crisis of CABG surgery can encourage health professionals to look at the family's natural healing abilities. By recognizing the family's natural abilities to handle stress, interventions can be identified and health professionals can assist the family in overcoming the barriers which block the healing process. The Double ABCX model also served as the theoretical framework for the Nolan, Cuppies, Brown, Pierce, Lepley, and Ohler (1992) study of the perceived stress and coping strategies of families of clients waiting for organ transplants. They noted that family homeostasis was maintained by the family by increasing the number of coping strategies. Supporting the families' existing coping strategies and exploring new ones helped maintain family integrity. The theories on stress and coping can be used as a foundation to understand how individuals and families deal with stressful situations. By understanding how stress affects individuals or families, health care 40 professionals can develop strategies to assist them in coping with the stressful event. CHAPTER III METHODOLOGY This descriptive comparative research study investigated the patterns of adaptation that family members experience when a member undergoes coronary bypass grafting surgery. The coping behaviors of the CABG clients' spouses and the adult children are the dependent variable in the study. The coronary artery bypass graft surgery is the independent variable. McCubbin's and Patterson's (1983) Double ABCX Model of Family Assessment and Adaptation provided the conceptual framework for the study. This chapter describes the study including the participants, setting, instrumentation, reliability and validity of instruments, procedures for data collection, and data analysis. Setting The sample chosen for this study included families of clients six to twelve months post coronary bypass graft surgery. These clients were participants in a six week course at a cardiac rehabilitation center in a large city in Northwest Pennsylvania. 41 The services offered by the cardiac rehabilitation center included cardiac diagnostics and a structured exercise program for diagnosed cardiac clients. The program had been in existence for seven years and drew membership from the community. Membership was voluntary but a physician referral was required. Participants in the program received a six week structured exercise program. Progression was monitored by staff who are available to reinforce or clarify information relating to the clients' recovery. The center also offered diet and risk factor modification classes. The families were encouraged to attend sessions with the clients. These sessions were usually offered in early afternoon. At the time of the study, the center did not have a formal support group for clients or families. Support was given informally to clients or families by staff. Once the program was completed, the clients were encouraged to participate in a long term exercise program and to continue to make necessary healthy lifestyle changes. The program was subsidized by Medicare and private insurance. Sample The convenience sample of this study consisted of 42 43 spouses and children of clients who underwent coronary bypass graft surgery during the calendar months March 1993-October 1993. The coronary bypass graft clients were six to twelve months post surgical event, The six to twelve months' time interval was chosen because literature has shown that by that time frame, families have begun to settle into a comfortable routine and have assimilated changes necessary to continue family functioning and coping (Baker 1990, Dhooper,1983, Gillis, 1984). During this time frame, families are often overlooked by health care professionals since the coronary bypass graft client is no longer in the acute health care setting. This time frame was short enough to allow the participant to recall with a fair amount of accuracy the stressors associated with the coronary bypass graft surgical event. The initial pool of participants consisted of fifty families comprised of spouses and adult children of coronary bypass graft clients who were enrolled in a cardiac rehabilitation center program. The families had to meet three criteria in order to participate in the study. One criterion used for the selection of participants was that the CABG surgery was the initial cardiovascular surgery. The second criterion was that family members were eighteen years of age or older, 44 either residing with the CABG client or not. The third criterion used for the selection of participants was imposed by this researcher to assure some consistency in family selection: all families participating in the study were selected from a list of post CABG clients who voluntarily participated in the rehabilitation program offered by a cardiac rehabilitation center. A list of possible clients and their families was obtained from the Director of the Cardiac Rehabilitation Center for the sample. Letters of permission for the study are on file at Edinboro University of Pennsylvania Department of Nursing. From this list, families who met the criteria for the study were selected. There was an initial pool of 50 clients who were contacted and asked to participate in the study. Thirteen clients and families were later excluded from participation because of the following reasons: widowed, never married, divorced, never having children, or rehospitalized. The remaining thirty-seven families met all of the criterion to participate in the study. to the request. Sixteen families responded A sample of 44 respondents, 16 spouses and 28 adult children, of CABG clients voluntarily consented to participate in the study. 45 Instrumentation A questionnaire was utilized to collect data for this descriptive survey. McCubbin's, Olson's, and Larsen's Family Crisis Oriented Personal Evaluation Scales (F-COPES) was chosen to determine the coping behaviors utilized by families when confronted by a problematic or difficult situation such as coronary bypass graft surgery (McCubbin, Larsen, & Olson, 1991). Permission to use the scale was granted by the authors (see Appendices A,B,C, and D). The scale is based on the coping dimension of the Double ABCX Model of Family Assessment and Adaptation (McCubbin and Patterson, 1983). The F-COPES integrates the resources and perceptions or meanings identified by the family into coping strategies (McCubbin, Olson, and Larsen, 1991). of the following components: The model consists pileup of stressors, family resources , meaning/perception of the event, and the coping and adaptation. The instrument consists of 30 items relating to coping behaviors. A five point Likert type scale (5=strongly agree, 4=moderately agree, 3=neither disagree or neither agree, 2=moderately, and l=strongly disagree) was used to elicit participants' self-reported levels of agreement with each statement on the questionnaire. A 46 sum score was obtained by totaling each participant' s responses for all items. Responses of "strongly disagree" and "moderately disagree" were defined as coping behaviors that did not describe the participants' responses when confronted with a problem or stressful event. Strongly disagree" or "moderately disagree" responses indicated the extent to which the participants disagreed. Responses by the participants to "strongly agree" and "moderately agree" were defined as coping behaviors that did describe their response when confronted with a problem or stressful event. Responses by the participants of "strongly agree" and "moderately agree" further described to which degree they agreed. Responses by participants to " neither agree" or "neither disagree" described a neutral response to the items on the questionnaire. Possible total F-COPES scores ranged from 30-150. The instrument focused on two levels of interactions as outlined in McCubbin's and Patterson's (1983) Double ABCX Model of Family Assessment and Adaptation. The two levels of interactions were: " (1) individual to family system (internal coping patterns) - relating to the internal management of conflicts between family members and (2) family to environment (external coping patterns) - relating to the external management of problems or 47 difficult situations which originated outside the family boundaries" ((McCubbin, Olson, & Larsen, 1991 p. 203). Each level consisted of scales to measure the family's coping patterns. Internal Coping Patterns consisted of three subscales: confidence in problem solving, reframing, and passivity. Confidence in problem solving included four items dealing with the family' s appraisal of the problem and the sense of mastery in dealing with unexpected events (McCubbin, Olson, & Larsen, 1991). Reframing family problems also consisted of four items reflecting the family's views on stressful experiences or the change in family's view of the situation - negatively, positively or neutral. Family Passivity focused on "inactive or passive behaviors" utilized by the family such as avoidance behaviors based on the lack of confidence in the family's ability to change the outcome (McCubbin, Olson, & Larsen, 1991, p. 204). passivity contained four items. Family Scores for Internal Coping Patterns ranged from 12-60. External Coping Patterns consisted of five scales which measured the family's external coping behaviors; church/religious resources, extended family, friends, neighbors, community resources (McCubbin, Olson, & Larsen, 1991) . Church /religious resources consisted of 48 four items evaluating the family's involvement with religious activities and ideology in dealing with difficulties. The extended family component contained four items which reflect on the family obtaining support by communicating with and being involved in activities with relatives. Friends consisted of four items focusing on the support obtained through friends. Neighbors contained three items focusing on the help and support received from individuals within the community. Community resources contained three items that focused on the use of neighborhood agencies and programs, such as professional counseling and physician advice (McCubbin, Olson, & Larsen, 1991). Scores for External Coping Patterns range from 18-90. See Appendix E for a copy of the tool. Reliability and Validity The F-COPES Scale developed by McCubbin, Olson, and Larsen, has a Cronbach alpha reliability of 0.87. Reliability coefficients have been determined in all five subscales and are from 0.64 to 0.87 (McCubbin & et al. 1991) . Content validity was established by the authors through studies utilizing students at the University of Minnesota. A pilot instrument consisting of 49 items was 49 developed based on research in the literature on family coping. After the initial testing the instrument was reduced to 30 items with eight strong factors emerging. This 30 item tool was retested four to five weeks later on the same research population. Based on the results of this study the final F-COPES was developed. The final F- COPES was then tested for reliability on a large sample consisting of 2740 participants. The results obtained in this final study were close to the results obtained in the initial studies (McCubbin & et al. 1991). Data Collection Plan On March 15, 1993, the guestionnaire with an introductory cover letter and a self-addressed return envelope was sent to all the spouses and adult children who met the criteria for participation in the study (see Appendix F). The subjects were informed that completing the questionnaire was voluntary, that findings would be reported in the aggregate, and that the results would be confidential. The questionnaire was mailed to all participants with instructions to complete the questionnaire and to mail the completed form in the postage-paid envelope provided within seven days. Spouses were asked to complete a yellow questionnaire, 50 and the adult children were asked to complete a green questionnaire, in order to facilitate sorting of the responses. An attempt was made to reach all families by telephone prior to the mailing of the questionnaire to verify addresses and to promote cooperation with the survey. Confidentiality was assured to each participant, and consent for participation in the study was obtained from the participant through signing of the consent form (see Appendix G). Subjects were assured that their participation in the study was voluntary. Refusal to complete the questionnaire had no impact on their family member's opportunity to participate in the program or on their membership in the cardiac rehabilitation program. One week after the initial mailing, a letter (see Appendix H) was sent to thank the families who had responded, to stress the importance of cooperation and to offer a replacement questionnaire if necessary to those who had not responded. Generally, the suggestions for data collection and cover letters were patterned according to Dillman's (1978) recommendations to ensure a high response rate. Anonymity of subjects was maintained by use of code numbers, with identification of subjects known only to the investigator. All lists containing individual names and scores were destroyed. All findings were reported in 51 the aggregate. Data collection ended April 25, 1993. A return of 44 respondents - 16 spouses and 28 children, was realized. The sixteen spouses' questionnaires and twenty-eight children's questionnaires provided data for analysis. Data Analysis Plan The descriptive data were analyzed to identify the respective coping patterns which spouses and children of CABG clients agreed or disagreed they used, to deal with the stressors of the surgery. Thirty-seven families were asked to participate in the study. responded to the request. Sixteen families A sample of 44 respondents, 16 spouses and 28 adult children, of CABG clients voluntarily consented to participate in the study. A statistician was consulted for data analysis. Based on the statistician's recommendations, the data were analyzed according to mean scores of the total F- COPES score of each participant, the mean scores of the categories, subcategories, and each statement identified on the F-COPES of each participant, and the frequency distribution of responses, and percentages of disagreement, neither agreement nor disagreement, and 52 agreement responses. Data sheets were used for tabulation of the data as the questionnaires were returned. To obtain a score, numbers one to five were assigned as a score signifying relative levels of agreement or disagreement for each item on the questionnaire. The numbers were then added to acquire a single total coping score based on all thirty items. High scores reflected the use of multiple coping behaviors. Low scores reflected fewer coping behaviors being utilized. The scores for the F-COPES items reflected the use of self­ reported coping strategies by the individual, not the effectiveness of the coping strategy. A mean score (for the aggregate) was calculated from the total scores of all questionnaires. An item analysis was performed on the questionnaires to indicate distribution of the participants' responses to the items on the questionnaire . A mean score was then calculated on each item on the scale. The responses were organized into internal and external coping patterns categories as identified by McCubbin, Olson, and Larsen. The percentage of distribution of the participants' responses to strongly disagree, moderately disagree, neither disagree nor disagree, moderately agree, or strongly agree were 53 calculated to provide information on which coping patterns the participants agreed or disagreed they utilized when dealing with stressors. In order to organize the data, the responses of strongly disagree and moderately disagree responses were added to determine the participants' disagreement responses. The responses to strongly agree and moderately agree were added to provide information on the participants agreement response. The responses of the participants to neither disagree nor agree were added to provide information on the participants neutral response. The data were further analyzed according to the percentage distribution of disagreed (strongly and moderately), neither disagreed nor agreed (neutral), and agreed (strongly and moderately) responses on the guestionnaire for internal and external coping patterns of families. To determine which specific coping patterns were utilized by the families, responses were analyzed according to the internal coping patterns and external coping patterns subcategories. The mean scores and the percentage of disagreement, neither disagreement nor agreement, and agreement were calculated for each of the subcategories. The percentage of disagreement, neither disagreement nor agreement, and agreement were calculated for each of the items contained in each of the subcategories. 54 The questionnaires were separated into the two groups (spouses and adult children) to determine the frequencies with which the various coping patterns were utilized by each group. The responses of the spouses and the children to the F-COPES questionnaires were tabulated as described above and scored. These score were averaged to gain the mean scores of each group. The data were further analyzed according to the percentage distribution of disagreed (strongly and moderately), neither disagreed nor agreed (neutral), and agreed (strongly and moderately) responses on the guestionnaire for internal and external coping patterns of the spouses and children. To determine which specific coping patterns were utilized by each group, the spouses' and children's responses were analyzed according to the internal coping patterns and external coping patterns subcategories. The mean scores and the percentage of disagreement, neither agreement nor agreement, and agreement were calculated for each of the subcategories. The percentage of disagreement, neither disagreement nor agreement, and agreement were calculated for each of the items contained in each of the subcategories. The returned questionnaires were deemed acceptable for the study if the form was completed. Chapter IV presents the findings from the data collected and analyzed about family coping behaviors. 55 Data relevant to the self-reported coping behaviors of the spouses of CABG clients and the adult children of CABG clients are analyzed as score data. The coping behaviors are identified according to frequency of self­ report of use, as well as according to McCubbin's and Patterson's (1991) Internal and External coping patterns categories and subcategories. Chapter IV Presentation and Analysis of Data The purpose of this research was to study coping behaviors of spouses and children of coronary bypass graft clients. The initial pool of research subjects consisted of families of 50 clients who were six to twelve months post coronary bypass graft surgery. The clients had surgery within the calendar months of March through October, 1993. These clients had participated in a cardiac rehabilitation program following discharge from the hospital. Of the families of 50 clients initially contacted, 16 spouses and 28 adult children agreed to participate in the study and returned their guestionnaires. All guestionnaires used in the study were completed; that is all of the questions were answered. The Double ABCX model of Family Adjustment and Adaptation by McCubbin and Patterson (1983) provided an organizing framework for the study. The Family Crisis Oriented Personal Evaluation Scale (F-COPES Scale) by McCubbin, Olson, and Larsen (1991) was utilized to elicit self-reports of family coping behaviors. The returned questionnaires were separated into two groups, those of 56 57 spouses and adult children. Each guestionnaire was scored by adding the response numbers (1-5) to the individual items. analyzed. The tabulated responses were then The higher the total score, the more coping behaviors were identified by the spouses and adult children of CABG clients as used to assist them in coping with the stressors produced by the surgical event. The responses to the guestionnaires were then analyzed according to the freguency distributions and percentages of responses. This chapter addresses the results of the study that were guided by the research guestions outlined in Chapter 1. The first guestion was posed, "What coping patterns were used by families during the six to twelve months following a family member's CABG surgery?" As previously discussed, the Family Crisis Oriented Personal Evaluation Scale (F-COPES Scale) by McCubbin, Olson, and Larsen (1991) focused on two levels of interaction: Internal and External Coping Patterns. Internal Coping Patterns gave definition to the way individual family members handle difficulties by using internal resources and support from the immediate family. Internal Coping Patterns scores ranged from a possible 12-60. Internal Coping Patterns category contained three subcategories; "Reframing", "Family Passivity", and 58 Confidence in Problem Solving". Table 1 summarizes the subcategories of Internal Coping Patterns and the corresponding questionaire items. Table 1 Internal Coping Patterns Subcategory Item Numbers* Confidence in Family Problem Solving 3,7,11,22 Reframing Family Problems 13,15,19,24 Family Passivity 12,17,26,28 * Refer to Appendix E "Refraining" related to the family's ability to positively redefine the situation. "Family Passivity" focused on the family's 'inactive' or passive approach in dealing with stressful or difficult situations. "Confidence in Problem Solving" reflected the family's appraisal and sense of mastery in dealing with unexpected events (McCubbin, Olson, Larsen, 1991). External Coping Patterns evaluated how the family managed the problem outside the immediate family matrix by acquiring outside resources or support (McCubbin, 59 Olson, and Larsen 1991). External Coping Patterns contained five subcategories: "Church/Religious Resources", "Extended Family", "Friends", "Neighbors", and "community Resources." External resources consisted of looking for support and assistance from friends, neighbors or family members outside the immediate family unit such as grandparents, aunts, or uncles, church or religious resources, and community resources. Also included in this category was professional counseling and seeking advice from the family doctor. Possible scores for External Coping Patterns ranged from 18-90. Table 2 summarizes the subcategories of External Coping Patterns and the corresponding questionaire items. Table 2 External Coping Patterns Subcategory Item Numbers* Friends 2,4,16,18 Neighbors 8,10,29 Extended family 1,5,20,25 Church resources 14,23,27,30 Community resources 6,9,21 *Refer to Appendix E 60 "Friends" focused on the involvement with friends to obtain support. The "Neighbors" subcategory centered around receiving favors and support from individuals within the community. "Extended Families" focused on the support and encouragement obtained from relatives. "Church Resources" reflected the families' involvement with church activities and their religious beliefs. "Community Resources" emphasized support obtained from community agencies, professional counseling and physicians. To determine which category of coping patterns the families of the CABG clients utilized, the mean scores for each category were determined. Table 3 summarizes the mean scores for the internal coping patterns and external coping patterns for families. The mean scores for internal and external coping patterns for families indicated that both categories were utilized by the family when dealing with the stressors of coronary bypass graft surgery. Based on the mean scores, it cannot be determined which category of coping patterns were more effective in dealing with the stressors associated with the CABG surgery. Nor can it be determined which coping patterns were utilized more. The results did indicate that both internal coping patterns and external coping patterns were utilized by the 61 families in this study. Table 3 Mean Scores on Internal and External Coping Patterns for Families Category Maximum Possible Scores Mean Scores Internal Coping 60.00 40.18 External Coping 90.00 59.73 n=44 To further determine which coping patterns were utilized by the families of CABG clients, the data were analyzed according to percentage distribution of disagreed (strongly and moderately), neither disagreed nor agreed (neutral), and agreed (strongly and moderately) responses on the guestionnaire for internal and external coping patterns by the families. Responses of strongly disagree and moderately disagree to the items on the questionnaire were combined under the heading of disagree for easier data analysis. The responses of neither disagree nor agree remained under the heading of neither disagree nor agree or a neutral position. Responses of strongly agree and moderately agree to the 62 items on the questionnaire were combined under the heading of agree for easier data analysis, Table 4 summarizes the percentage distribution of the responses of disagree, neither disagree nor agree, and agree by the families for the internal and external coping patterns. Table 4 Percentage Distribution of Internal and External Coping Patterns of Families Disagree Category NA/ND* Agree n=44 Internal Coping 30% 18% 52% External Coping 26% 21% 53% *NA/ND= neither agree nor disagree The percentage scores of families were close for both the internal and external categories. This indicated that the families of CABG clients reported that they utilized coping patterns in these categories at similar rates to cope with the stressors associated with the surgery. This result was not surprising since the families are interconnected by similar boundaries and 63 beliefs. The data were further analyzed according to the subcategories of Internal Coping Patterns and External Coping Patterns to determine which coping patterns were utilized. The data for each of these subcategories were analyzed according to the percentage distribution of disagreed (strongly and moderately), neither disagreed nor agreed (neutral), and agreed (strongly and moderately) responses on the questionnaire for Internal Coping Patterns subcategories. Table 5 summarizes the percentage distribution of families for Internal Coping Patterns subcategories. Analysis of the data revealed that the subcategories of reframing (72%) and confidence in problem solving (73%) had the highest percentage of agreement and the lowest percentage of disagreement (10%). This indicated that the families of CABG clients agreed that the coping patterns in these subcategories assisted them in dealing with the stressors associated with coronary bypass graft surgery. The results indicated that the families viewed change positively and were able to feel a sense of mastery or control over the stressors and events associated with the coronary bypass graft surgery. 64 Table 5 Percentage Distribution of Internal Coping Patterns Subcategories of Families Subcategories DA* NA/ND* A* Reframing (13,15,19,24)+ 10% 18% 72% Family Passivity (12,17,26,28)+ 71% 19% 10% Confidence in Problem Solving (3,22,27,11)+ 10% 17% 73% n=44 +Refers to statements in Appendix E *DA= disagree, NA/ND= neither agree nor disagree, A=agree The Internal Coping Patterns subcategory of "Family passivity" had the lowest percentage of agreement (10%) and the highest percentage of disagreement (71%). This indicated that the coping patterns in this subcategory were not utilized by the families. The families indicated by these results that they did not take a passive a pproach to problem solving or with coping with the stressors associated with the coronary bypass graft surgery. The subcategories of external coping patterns were 65 analyzed. External coping patterns consisted of five subcategories: "Friends", "Neighbors", "Extended Families", "Church Resources", and "Community Resources". These subcategories were analyzed according to the percentage distribution of disagree (strongly and moderately), neither agreed nor disagreed (neutral), and agree (strongly and moderately) responses to the questionnaire. Table 6 summarizes the percentage distribution of the External Coping Patterns subcategories for families. Table 6 Percentage Distribution of External Coping Patterns Subcategories of Families DA* NA/ND* A* Friends (2,4,16,18)+ 16% 25% 59% Neighbors (8,10,29)+ 48% 23% 29% Extended family (1,5,20,25)+ 34% 20% 46% Church resources (14,23,27,30)+ 16% 16% 68% Community resources (6,9,21)+ 23% 18% 59% Subcategories n=44 +Refers to statements in.Appendix E agree nor disagree, A=agree *DA= disagree, NA/ND- neither i 66 "Church Resources" had the highest percentage of agreement (68%) and the lowest percentage of disagreement (16%) of all the External Coping Patterns subcategories. This percentage score reflected the importance religious beliefs and involvement in church activities had in assisting families cope with the stressors associated with the surgery. External Coping Patterns subcategory "Friends" was analyzed. Sixty percent of the families agreed that friends were a source of support and encouragement in helping them cope with the stressors associated with the CABG surgery. Friends offered ideas or gave suggestions that reduced the burden of the stressors encountered with the surgical event. In the subcategory of "Community Resources", fifty- nine percent of the families surveyed agreed that external resources found in the community helped them cope with the stressors encountered by the CABG surgery. Community resources involved the utilization of community agencies and programs as well as professional services such as counseling. One community agency identified was a Phase II Cardiac Rehabilitation Center. This program provided information to the families regarding lifestyle changes, cardiac risk factor modifications, diet, and exercise. The informal make up of the rehabilitation program also offered the families an avenue to gain support and to offer encouragement to other families who faced the same or similar circumstances. The External Coping Pattern subcategory of "extended family* focused on the support obtained by communicating and interacting with relatives. Forty-six percent of the families surveyed agreed that they utilized their relatives for support in helping them cope with the stressors associated with the surgery. This result (less than half of the families surveyed) indicated that not all families looked to their relatives for support. Distant geographical locations of relatives, no existing relatives, or not having an existing relationship may have been contributing factors for why the families did not utilize this particular coping pattern. The External Coping Patterns subcategory of "Neighbors" had the lowest percentage of agreement (29%) and the highest percentage of disagreement (48%). This subcategory included the support and favors received from neighbors within the community. The results indicated that to a degree, the families in this study did utilize their neighbors for favors. A reason families in this study may not have utilized their neighbors with greater frequency might have been that many do not know, or have minimal interactions with, their neighbors. Therefore, 68 the families may not have been comfortable in asking neighbors for favors or discussing concerns with them. The Internal Coping Patterns and External Coping Patterns subcategories were then analyzed according to specific items contained in each of them. Internal Coping Patterns contained three subcategories and each of these subcategories contained four items. The responses to each item were analyzed according to the percentage of distribution of disagree, neither disagree nor agree, and agree. Tables 7,8, and 9 summarizes the percentage distribution of internal coping patterns subcategories items. The first subcategory to be analyzed was "Reframing" family problems. This subcategory contained four items which dealt with families' ability to redefine the situation or their view of making the outlook more positive . Table 7 summarizes the percentage of distribution of disagree, neither disagree nor agree, and agree for the items contained in the Internal Coping Patterns subcategory of "Reframing". The coping pattern with the highest percentage of agreement (95%) and the lowest percentage of disagreement (0%) was "Accepting that difficulties occur unexpectedly". belief that This statement reflected the families' difficulties were often unexpected and 69 unpredictable. The statement "Accepting stressful events as a fact of life" had a 71% agreement and a 7% disagreement by families. This result indicated that the families in this study accepted stress as a part of living. By accepting stress as a part of life, the families were able to give a reason why stress exists in life which enabled them to move forward. Table 7 Percentage Distribution of Internal Coping Patterns Reframing Subcategory, Items for Families Specific Subcategory items DA* NA/ND* A* n=44 11% 27% 61% Accepting stressful events as a fact of life. 7% 16% 71% 3. Accepting that difficulties occur unexpectedly. 0% 5% 95% 4. Defining the family problem in a more positive way so that we do not become too discouraged. 20% 25% 55% 1. Showing that we are strong. 2. *DA= disagree, NA/ND= neither agree nor disagree, A=agree The statement Showing that we are strong" had a 61% agreement by families. This result reflected the 70 families belief in themselves and their abilities to face any difficulties encountered as a family. The item Defining the family problem in a more positive way" had a 55% agreement by families. families This reflected the agreement that positively redefining the problem enabled them to make the problem more acceptable. The Internal Coping Patterns subcategory "Family Passivity" was analyzed. The items contained in this subcategory reflected the families view on the passive approach to dealing with stressful events. subcategory contained four items. This Table 8 summarizes the results. Overall, the percentage of agreement for the items in this subcategory were low, and the percentage of disagreement were high. These results indicated the families did not passively deal with the stressors of the CABG surgery. They took an active approach in problem solving and stress reduction. The statement "Believing if we wait long enough, the problem will go away" had the highest percentage of disagreement (89%) and the lowest percentage of agreement (2%). This indicated that the families did not passively wait for the stressors of the surgery to dissolve rather they took an active approach to problem solving and coping with the stressors associated with the CABG surgery. The statements 71 "Watching television" and "Knowing luck plays a big part in how well we are able to solve family problems" had 70% and 68% disagreement, respectively and a low percentage of agreement (9%). These results reinforced the families active approach to coping with the stressors of the CABG surgery. The families in this study did not leave anything to chance by passively coping. Instead, they actively dealt with the stressors associated with CABG surgery. Table 8 Percentage Distribution of Internal Coping Patterns Family Passivity Subcateqory, Items for Families Specific Subcategory items n=44 DA* NA/ND* A* 1. Watching television. 70% 20% 9% 2. Knowing luck plays a big part in how well we are able to solve family problems. 68% 23% 9% Feeling that no matter what we do to prepare, we will have difficulty handling problems. 55% 25% 20% Believing if we wait long enough, the problem will go away. 89% 9% 2% 3. 4. *DA= disagree, NA/ND= neither agree nor disagree, A=agree The Internal Coping Patterns subcategory of 72 "Confidence in Family Problem Solving" contained four items relating to the families appraisal of problems and their sense of control in dealing with problems. Table 9 summarizes the percentage distribution of Internal Coping Patterns Confidence in Family Problem Solving" subcategory items for families. Table 9 Percentage Distribution of Internal Coping Patterns Confidence in Family Problem Solving Subcategory, Items for Families Specific Subcategory items DA* NA/ND* A* n=44 1. Knowing we have the power to solve major problems. 2% 9% 89% ' 2. Knowing that we have the strength within our own family to solve our problems . 7% 7% 86% 3. Facing the problems "head on and trying to get solutions right away. 5% 7% 89% 4. Believing we can handle our own problems. 5% 25% 70% *DA: disagree, NA/ND= neither agree nor disagree, A=agree Data analysis revealed the percentage of agreement for the four items in this subcategory were close. These results indicated the families in this study had utilized 13 these items similarly when dealing with the stressors associated with CABG surgery. The statement "Knowing we have the power to solve major problems" had the highest percentage of agreement (89%) and the lowest percentage of disagreement (2%). This result indicated that the families agreed that they had the belief and confidence within themselves and their abilities to solve problems. The statements " Facing the problems 'head-on' and " Trying to get solutions right away" had an 89% agreement by families. These results indicated the families did not avoid or ignore the problems that faced them. Instead the families looked for solutions to their problems. The statement "Knowing that we have the strength within our own family to solve our problems" had an 86% agreement by families. This result indicated the families agreed that they had confidence in their abilities to solve problems within themselves. This reflected the families sense of control over the event and their beliefs in their coping abilities. The External Coping Patterns subcategories were analyzed according to the specific items contained in each of them. subcategories; External coping patterns contained five friends, neighbors, extended family, church/religious resources, and community resources. The subcategories of friends, extended family, 74 church/religious resources each contained four items. The subcategories of neighbors and community resources contained three items each. The responses to each item were analyzed according to the percentage of distribution of disagree, neither disagree nor agree, and agree. Tables 10,11,12,13 and 14 summarizes the percentage distribution of external coping patterns subcategories items. The subcategory of "Friends" related to the support and encouragement obtained from friends. The responses of disagree, neither disagree nor agree, and agree were analyzed. Table 10 summarizes the percentage distribution of the items of the External Coping Patterns subcategory "Friends". Data analysis revealed the two items with the highest percentage of agreement (66%) for this subcategory relate to the support and encouragement received and the sharing of concerns with friends. This indicated the families agreed that friends had a role in assisting them in coping with the stressors of the surgery. Data analysis also revealed that the families agreed (59%) that information and advice received from families who faced similar problems was beneficial, common bond enabled the families to share their experiences and concerns. The In return, this interaction 75 validated to the families that their reactions and emotions were normal. Table 10 Percentage Distribution of .External Coping Patterns Subcategory Friends, Items for Families Specific Subcategories items n=44 DA* NA/ND* 16% 18% 66% 2. Seeking information and advice from persons in other families who have faced the same or similar problems. 14% 27% 59% 3. Sharing concerns with close friends. 14% 20% 66% 4. Exercising with friends to stay fit and reduce tension. 20% 36% 43% 1. Seeking encouragement and support from friends. *DA= disagree, NA/ND: A* neither agree nor disagree, A=agree Exercising with friends had the lowest percentage of agreement (43%) for families in the friends subcategory. This indicated that this particular coping pattern was not utilized to the same degree as other items in this with the stressors subcategory were used to cope associated with the surgery. The families in the study as a means of did not agree that exercising with friends as beneficial as sharing reducing stress and tension was 76 their concerns with or seeking support from friends. The data were analyzed according to the percentage distribution of the items under the External Coping Patterns subcategory of ’’Neighbors", This subcategory contained three items pertaining to the support and favors received from neighbors. Table 11 summarizes the results. Table 11 Percentage Distribution of External Coping Patterns Subcategory Neighbors, Items for Families DA* Specific Subcategories Items n=44 NA/ND* A* 1. Receiving gifts and favors from neighbors 30% (e.g. food, taking mail, etc.) 25% 45% 2. Asking neighbors for favors and assistance. 45% 27% 27% 3. Sharing problems with neighbors. 68% 18% 14% *DA= disagree, NA/ND= neither agree nor disagree, A=agree Data analysis revealed that receiving gifts and food from neighbors had the highest percentage of agreement (45%) for this subcategory. Less than half of the families surveyed agreed that gifts and food received Analysis of the data also from neighbors was a benefit. 77 revealed sharing of problems with neighbors had the lowest percentage of agreement (14%) and the highest percentage of disagreement (68%) for this subcategory. This indicated the families did not agree that sharing their concerns with their neighbors would help them cope with the stressors associated with the CABG surgery. Many reasons for this high percentage of disagreement may­ exist. For example, the families may not have felt comfortable enough to share their problems with their neighbors . The data were analyzed according to the percentage distribution of the items under the External Coping Patterns subcategory of "Extended Family". This subcategory relatws to the support received from relatives. Table 12 summarizes the results. Data analysis revealed sharing difficulties with relatives had the highest percentage of agreement (59%). This result indicated the families agreed that sharing their concerns and problems with their relatives was beneficial in reducing the stressors associated with the CABG surgery. This result was not surprising since the interconnected and shared relatives and the families were common bonds. 78 Table 12 Percentage Distribution of External Coping Patterns Subcateqory Extended Family, Items for Families Specific Subcategories Items n=44 DA* NA/ND* A* 1. Sharing difficulties with relatives. 27% 14% 59% 2. Seeking advice from relatives (grandparents, etc.). 39% 23% 39% 3. Doing things with relatives. 20% 25% 55% 4. Asking relatives how they feel about problems we face. 48% 20% 32% *DA= disagree, NA/ND neither agree nor disagree, A=agree Data analysis revealed that "Asking relatives how they felt about the problem" had the lowest percentage of agreement (32%). This result indicated relatives perception of the problem was not a significant factor in helping families in this study cope with the stressors associated with CABG surgery. "Doing things with relatives" had a 55% agreement for families. The families in this study agreed being involved in activities with relatives did help them cope with the Data stressors associated with the CABG surgery. low analysis revealed seeking advice from relatives had a This indicated families percentage of agreement (39%). 79 to a degree sought the advice of relatives to assist them in coping with the stressors associated with the CABG surgery. The families would rather share their problems with relatives but were not interested in seeking their advice or perception of the situation. The data were analyzed according to the percentage distribution of the items under the External Coping Patterns subcategory of "Church/Religious Resources". This subcategory contained related to the religious beliefs of the families in the study. Table 13 summarizes the results. Table 13 Percentage Distribution of External Coping Patterns Subcategory Church/Religious Resources,Items for Families Specific Subcategories Items n=44 DA* NA/ND* A* 9% 11% 80% Participating in church activities. 20% 18% 61% 3. Seeking advice from a minister. 30% 27% 43% 4. Having faith in God. 7% 9% 84% 1. Attending church services. 2. *DA= disagree, NA/ND- neither agree nor disagree, A=agree 80 Data analysis revealed that faith in God had the highest percentage of agreement (84%) for families. This indicated that the families in this study relied greatly on this coping pattern to deal with the stressors associated with the surgery. Attending religious services had an 80% agreement by the families, which indicated that they sought solace in attending religious services. Participating in religious activities had a 61% agreement by the families. This indicated they utilized this coping pattern in dealing with the stressors associated with CABG surgery to a great degree. The lowest percentage of agreement was seeking advice from a minister (43%). This indicated families did not utilize this coping pattern to assist them in coping with the stressors of the surgery. The data were analyzed according to the percentage distribution of the items under the External Coping Patterns subcategory of "Community Resources". This subcategory related to the support received from Also included in this subcategory community agencies. was professional counseling and seeking information for the physician. Table 14 summarizes the results. Data analysis revealed that seeking advice and information from the of agreement (82%) physician had the highest percentage in this subcategory. Because anxiety 81 can be heightened by the families' misunderstanding of the lack of information or recovery process from CABG surgery, educating them can reduce their stress and fears. The result of data analysis indicated the families agreed that the information received from the physician was important and helped reduce the stress of the surgery. Table 14 Percentage Distribution of External Coping Patterns Subcategory Community Resources, Items for Families DA* NA/ND* 1. Seeking assistance from community agencies and programs. 34% 23% 43% 2. Seeking information and advice from the family doctor. 14% 5% 82% 3. Seeking professional counseling and help for the family difficulties. 34% 25% 52% Specific Subcategories Items n=44 *DA= disagree, NA/ND A* neither agree nor disagree, A=agree Seeking professional counseling had a 51% agreement by families. This indicated professional counseling was viewed as helpful by half of the families surveyed. Professional counseling allowed the families to ventilate 82 their fears and concerns in a nonthreatening environment in addition to receiving advice from an objective source. Assistance from community agencies and programs had the lowest percentage of agreement (43%) for this subcategory. This indicated a little under half the families in the study utilized community agencies to cope with the stressors of CABG surgery. Data analysis revealed that the families in this study utilized a variety of coping patterns to cope with the stressors associated with CABG surgery. The families relied on their religious faith and their confidence in their problem solving abilities to cope with the stressors of the CABG surgery. The families did not passively deal with the stressors. They actively looked for new strategies to adapt to the stressors associated with the stressors of CABG surgery. The second research question posed was, "How did the adult children of CABG clients cope with the stressors of the surgery as compared to the spouses of CABG clients during the six to twelve months following the surgery?" The Family Crisis Oriented Personal Evaluation Scales (F-COPES) (McCubbin , Olson, and Larsen, 1991) were developed to identify problem-solving and behavioral strategies utilized by families in difficult or 83 problematic situations. The scale focused on two levels of interaction identified in the Double ABCX Model: 1. Individual to family system or the internal means of handling difficult or problematic situations and 2. Family to social environment or the external means of handling problems that emerged outside the family boundaries. To determine how each group coped with the stressors of the CABG surgery, the questionnaires were separated into the two groups (spouses and adult children). The responses of the spouses and the children to the F-COPES questionnaires were tabulated and given a score. Total F-COPES scores for the present study ranged from 76 to 120 for the children and 86 to 137 for the spouses. These scores were averaged to gain the mean scores for each group. Table 15 summarizes the results. Table 15 F-COPES Mean Scores for the Spouses and Children Variable Maximum Possible Score Mean Scores Spouses: (n=16) 150.00 105.75 Children: (n=28) 150.00 102.54 84 Data analysis revealed that the mean scores were close, indicating that both groups had coped with similar strength. Based on the mean scores for both groups, it could not be determined which group coped better with the stressors associated with CABG surgery. The spouses' and children's responses to the Family Crisis Oriented Personal Evaluation Scale (F-COPES Scale) were divided into Internal and External Coping Patterns and a score for each category was tabulated. These scores were averaged to determine the category's mean scores for each group. The scores for each category were analyzed to determine which coping patterns were utilized by each group. Table 16 summarizes the results. Table 16 Mean Scores on Internal and External Coping Patterns of Spouses and Children Maximum Possible Score Category Mean Score Internal Coping Patterns (n=16) 60.00 39.38 Children (n=28) 60.00 38.18 90.00 61.31 90.00 58.57 Spouses External Coping Patterns Spouses (n=16) Children (n=28) 85 Analysis of the data revealed that both groups' mean scores were close indicating that both groups utilized each of the categories of Internal and External Coping Patterns similarly. The spouses' mean scores for both categories were slightly higher (internal 39.38 and external 61.31) as compared to the adult children' s mean scores (internal 38.18 and external 58.57). This result indicated the spouses utilized both Internal and External Coping Patterns to a slightly greater degree than the children. To further determine which coping patterns were utilized by the spouses and children of CABG clients, the data were analyzed according to percentage distribution of disagreed (strongly and moderately), neither disagreed nor agreed (neutral), and agreed (strongly and moderately) responses on the questionnaire for Internal and External Coping Patterns by spouses and children. Table 17 summarizes the percentage distribution of the responses of disagree, neither disagree nor agree, and agree by spouses and children for the Internal and External Coping Patterns. The percentage of agreement of spouses for Internal Coping Patterns (59%) and External Coping Patterns (58%) was higher as compared to the children's percentage of agreement for Internal Coping Patterns (52%) and External 86 Coping Patterns (49%), This indicated that the spouses had utilized more coping patterns in the Internal and External categories as compared to the children. Table 17 Percentage Distribution of Internal and External Coping Patterns of Spouses and Children Category Disagree NA/ND* Agree (n=16) 26% 15% 59% Children (n=28) 30% 18% 52% (n=16) 26% 16% 58% Children (n=28) 27% 23% 49% Internal Coping Patterns Spouses External Coping Patterns Spouses *NA/ND= neither disagree nor agree To determine which specific coping patterns were utilized by each group, the spouses' and children's according to the Internal Coping responses were analyzed Coping Patterns subcategories, The Patterns and External were calculated for the mean scores each category Internal Coping Patterns. Table 18 subcategories of summarizes the results. 87 Table 18 Internal Coping Patterns Mean Scores of Spouses and Children Subcategories Maximum Possible Score Spouses (n=16) Children (n=28) Reframing (13,15,19,24) * 20 17.44 15.50 Family Passivity 12,17,26,28)* 20 7.75 7.64 Confidence in Problem Solving (3,22,27,11)* 20 16.38 15.21 *Refers to statements in Appendix E The spouses' reframing mean score (17.44) was higher than the adult children's mean score (15.50), indicating that the spouses' relied on this coping pattern more than the adult children. ••Reframing" reflected the spouses' and children's abilities to redefine the situation positively. "Family Passivity" subcategory had the lowest 7.75 and children mean scores for both groups (spouses this subcategory were close. This The scores in 7.64) . did not find passivity an indicated that both groups assist them in dealing with effective coping pattern to The coping patterns in this subcategory were the stress. and children. ones least utilized by the spouses 88 The spouses' mean score (16.38) and the children's mean score (15.21) for the subcategory "Confidence in Problem Solving" were close as well. This result indicated spouses and children utilized this coping pattern similarly. "Confidence in Problem Solving" reflected the spouses' and children's confidence in their problem solving abilities. As indicated by the mean scores, the spouses utilized more coping patterns when compared to the adult children. This was evidenced by the mean scores and the percentage of distribution scores for each group. Internal Coping Patterns subcategories were analyzed according the percentage distribution of disagreed, neither disagreed nor agreed (neutral), and agreed responses on the questionnaires of the spouses and children. Table 19 summarizes the percentage of the responses of families on the Internal Coping Patterns. The percentage of agreement for the spouses (92%) in was higher than the the subcategory of "Reframing" This indicated children's percentage of agreement (73%). utilized the coping patterns in the spouses in the study with the stressors of the CABG this subcategory to cope surgery more than the children. 89 Table 19 Percentage Distribution of Internal Coping Patterns Subcategories for Spouses and Children Subcategories DA* NA/ND* A* Refraining Spouses (n=16) 2% 6% 92% Children (n=28) 7% 20% 73% Family Passivity Spouses (n=16) 67% 23% 9% Children (n=28) 72% 17% 11% Confidence in Problem solving Spouses (n=16) 8% 14% 78% Children (n=28) 11% 19% 70% *DA= disagree, NA/ND= neither agree nor disagree, A=agree Low percentage of agreement on the "Family Passivity" subscale for both groups reflected the spouses' (9%) and the children's (11%) negative view of this subcategory as a means of coping with stress. The high percentage of disagreement for both the spouses (67%) and the children (72%) in this subcategory further supported the spouses and the children's beliefs this 90 coping pattern was not effective in coping with the stress of the surgery. The spouses and children in this study did not passively deal with the stressors of the surgery rather they took an active approach in coping with them. Further data analysis of Internal Coping Patterns' subcategories revealed that 78% of the spouses and 70% of the children agreed that they had confidence in their problem solving abilities and mastery over the situation. This result indicated that the spouses agreed that they had the strength and ability within the family to solve problems by facing them "head-on" at a higher level than the children. The data were then analyzed according to External Coping Patterns. The mean scores for each of the five subcategories of External Coping Patterns were calculated from the questionnaire responses of the spouses and children. Table 20 summarizes the mean scores of spouses and children for the External Coping Patterns subcategories. 91 Table 20 External Coping Patterns .Mean Scores of Spouses and Children Subcategories Maximum Possible Score Spouses (n=16) Children (n=28) Friends (2,4,16,18)* 20 14.00 14.14 Neighbors (8,10,29)* 15 7.63 6.75 Extended family (1,5,20,25)* 20 13.19 12.68 Church resources (14,23,27,30)* 20 15.63 14.75 Community resources (6,9,21)* 15 10.88 10.25 *Refers to statements in Appendix E The scores for the subcategories of "Friends, Neighbors, Community Resources and Extended Family" were similar for both groups indicating that they looked for support in these areas. The mean scores in the subcategory of "Church Resources" indicated the spouses (15.63) utilized this coping pattern to a slightly higher The spouses degree than the adult children (14.75). as a sought the comfort and support of their religion means of coping more often than did the adult children. the subcategories of "Friends" The mean scores for 92 (spouses 14.00 and children 14.14), 14.14), -Neighbor,(spouses 7.63 and children 6.75), -Extended Families(spouses 13.19 and children 12.68), and "Community Resources" (spouses 10.88 and children 10.25) were close. This indicated both groups utilized these coping patterns similarly to cope with the stressors associated with CABG surgery. External Coping Patterns subcategories were analyzed according to the percentage distribution of disagreed (strongly and moderately), neither agreed nor disagreed (neutral), and agreed (strongly and moderately) responses on the guestionnaire of the spouses and children. Table 21 summarizes the percentage of the responses of families on the external coping patterns. Data analysis revealed the spouses' percentage of agreement scores were higher in the subcategories of "Neighbors", "Extended Family", "Church and Community Resources". Of the 16 spouses, 35% agreed that they relied on neighbors for support and assistance as compared to the 25% of the 28 adult children who had agreed. In this subcategory, support from neighbors ranged from picking up the mail, to receiving food, to asking them for favors or assistance. The spouses looked favors more than the to their neighbors for these children did. 93 Table 21 Percentage Distribution of External Coping Patterns Subcateqories for Spouses and Children Subcategory DA* NA/ND* A* Friends Spouses (n=16) 20% 21% 59% Children (n=28) 13% 29% 58% Neighbors Spouses (n=16) 46% 19% 35% Children (n=28) 49% 26% 25% Extended family Spouses (n=16) 33% 17% 50% Children (n=28) 34% 22% 44% Church resources Spouses (n=16) 16% 8% 76% Children (n=28) 17% 21% 62% Community resources Spouses (n=16) 17% 14% 69% Children (n=28) 27% 19% 54% *DA= disagree, NA/ND= neither disagree nor agree, A=agree "Friends" were an important means of support for 94 both groups. This was evident in the percentage of agreement scores for the spouses (59%) and the children (58%) in this subcategory, Friends were seen as a source of support and encouragement and someone to share concerns. In the subcategory of "Extended Families", 50% of the spouses surveyed agreed that they obtained support from their extended families while 44% of the adult children had agreed. These results indicated support from the extended family was utilized by the spouses to a greater degree than the adult children of CABG clients. Overall, the highest percentage of agreement was in the subcategory of "Church Resources". Seventy-six percent of the spouses agreed that support was gained from religious/church resources however, 62% of the children agreed that they gained support from this resource to help them cope with the stressors of the surgery. The 21% of the children who neither agreed nor disagreed reflected an indifference to religion as a coping strategy when compared to the spouses (8%). Nevertheless, in this study, religion played an important with the stress of the part in assisting families to cope situation. Of the 16 spouses surveyed, 69% agreed they utilized of information and community agencies as a source 95 assistance in dealing with the situation, while only 54% of the children agreed. Community resources consisted of professional counseling, seeking information from physicians, and turning to other families' who have experienced a similar situation to help cope with the stress of the event. Community resources offered an objective point of view and often provided necessary information and emotional support. Based on data analysis it cannot be determined how the spouses or children coped with the stressors associated with CABG surgery. If the hypothesis (McCubbin, Olson, and Larsen, 1991) holds true (the more coping patterns utilized the better the adaptation to stressful events), then data analysis revealed the spouses coped better than the children. This finding was based on the spouses mean scores and percentage of agreement for the coping patterns identified on the FCOPES scale by McCubbin, Olson and Larsen. However, relatively higher scores only indicated the spouses agreement that the coping patterns identified on F-COPES (McCubbin, Olson, Larsen, 1991) did assist them in coping compared to the with the stressors of the surgery as did not reflect the children's score. These scores coping patterns were in dealing with effectiveness of the the stressors of the surgery. 96 Families, like individuals, differently in times of stress. have developed and cultivated coping with stress. are unique and react Families over the years their own unique methods of Each member of the family plays an unique role within the family network. Because of this uniqueness and individuality of families, there can be no standardization of coping strategies, used or recommended. The role of the nurse is to explore with families which coping patterns best meet their needs and to offer support and assistance as needed. The nurse needs to continually assess and recommend interventions as indicated which will strengthen the families' coping abilities. Nurses need to remain open and flexible to meet the needs of each family. Appendices I and J outline the mean scores of specific coping patterns as identified by the F-COPES model of the spouses and the children of coronary bypass clients in this research study. Appendix K and Appendix of the L summarizes the distribution of percentages Based on the spouses and children for the F-COPES model. analysis of percentage distribution for the Family Crisis Oriented Personal McCubbin, Olson Evaluation Scale (F-COPES Scale) by and Larsen (1991) , both the spouses and they responded to difficult or the adult children agreed utilizing their internal strength stressful situations by 97 and coping abilities to direct their energies at reducing or eliminating stress. They accomplished this by redefining the situation in a more positive way or accepting it as part of life, Both groups also had confidence in their problem solving abilities to face the challenges of the CABG surgery. They knew they had the strength to solve any major problem encountered. Table 22 summarizes the coping strategies that had the highest percentage of agreement for spouses and children (> 75%). Table 22 Coping Strategies with Highest Percentage of Agreement of Spouses and Children (> 75%). Strategy 1. Knowing that we have the strength within our own family to solve our problems. 2. Facing the problems "head-on" and trying to get solutions right away. 3. Knowing we have the power to solve major problems. 4. Accepting stressful events as a fact of life. 5. Accepting that difficulties occur unexpectedly. 6. Seeking information and advice from the family doctor. 7. Having faith in God. Spouses n=16 Children n=28 100% 89% 94% 86% 88% 78% 96% 68% 100% 90% 94% 75% 88% 82% 98 Analysis of the data revealed the statements which had the highest percentage of agreement for spouses and children in this study were those dealing with Internal Coping Patterns. The high percentage of agreement for both groups (spouses 100% and adult children 89%) was with the statement "Knowing that we have the strength within our own family to solve our problems". This reflected both groups' confidence in their problem solving abilities and offered a sense of hope. This hope gave the family a positive outlook on the situation and enabled them to move forward. Spouses agreed (100%) and the children agreed (90%) with the statement " Difficulties do occur unexpectedly" . This indicated both groups agreed that life is not predictable and difficulties can and do occur unexpectedly without warning. This belief gave meaning to a situation in which the family had little or no control over. The spouses had a higher percentage of agreement (96%) when compare to the children's percentage of "Stressful events are agreement (68%) with the statement indicated the spouses a part of life"* These scores of life to a greater degree accepted stress as a part than the adult children. family doctor was another Seeking advice from the 99 area of high P ntage of agreement with spouses (94%) ehildrot (75%). (75,>. “ compared to Thle iMicat6d th. spouses sought information from the family doctor to a greater degree than the adult children did. It may have been the spouse of the ill family member who became the primary care giver. Information seeking would have been necessary in order to understand the illness and its demands more fully. Thus, the spouses may have used this information to plan for family reorganization and gather resources and support in managing the situation. Gathering information also may have offered a sense of control over the situation. This sense of control may have positively impacted the family's overall appraisal Further analysis of the data revealed of the situation. that the subcategory "Religious Resources" was frequently used as a coping strategy by both the spouses and the adult children. Eighty-eight percent of the spouses and 82% of the children agreed that "Having faith in God" helped them cope with the event. This indicated that the participants in this study turned to their religious faith to help them deal with difficulties and stressors associated with the surgery, hope and comfort in Turning to God gave them dealing with events in which they One participant felt they had little or no control. the biggest help in commented that faith in God was 100 getting through the surgery and continued to be so through the recovery period. The coping strategies in which both the spouses and children had a high percentage of disagreement are summarized in Table 23. These coping strategies fall under the category of "Family Passivity". Table 23 Coping Strategies with the Highest Percentage of Disagreement of Spouses and Children Strategy Spouses n=16 Children n=28 1. Knowing luck plays a big part in how well we are able to solve family problems . 57% 75% 2. Feeling that no matter what we do to prepare, we will have difficulty handling problems. 69% 49% 3. Believing if we wait long enough, the problem will go away 87% 89% The high percentage of disagreement for both groups a passive approach indicated coping patterns dealing with to the problem were the least coping strategies used. this study did not agree with The spouses and children in taking a passive approach in dealing with the stress encountered during approach to the the recovery process, An active problem provided the opportunity for 101 family involvement in the client's care and for family unity and growth. The passive coping strategies, such as "Knowing luck plays a narti „ n . y a part in m solving problems" (spouses 57% and children 75% \ = ' and a • Not doing anything will make the problem go away" (spouses 87% and children 89%) were the coping strategies least utilized by the spouses and children. Strategies used most frquently by the spouses and children in this study may be useful for families of future CABG clients. Based on the distribution and mean scores and the percentage of agreement revealed in this research study, the nurse can recommend to spouses and children of CABG clients interventions which will enhance both their internal and external coping abilities. These interventions need to be directed at strengthening their problem solving abilities, assisting them with redefining the situation in a more positive way, and making them more aware of their strengths to face the challenges encountered by the surgery. Families may also be encouraged to seek relatives. outside support from friends and Appropriate religious personel may be consulted to assist the family in coping during the clients' recovery. As data analysis of CABG clients coped revealed, the families and spouses with the stressors of the recovery 102 process by using a variety of coping patterns. To recommend specific coping patterns to CABG clients' spouses and children would limit the coping abilities of the family. The family needs to be given guidance to utilize a variety of coping patterns. Each family is unique with its own set of established rules. Therefore, the nurse's role in assisting the family with the stressors associated with CABG surgery is to assess the family's established coping patterns to suggest patterns that have worked for others, and to offer support and encouragement to the family. If the family's established coping mechanisms are not sufficient to help the family deal with the stressors, then the nurse should explore new strategies of coping with the family. CHAPTER V CONCLUSION This descriptive comparative research study was designed to determine patterns of adaptation of the spouses and family members of coronary bypass graft clients to the stressors of coronary bypass graft surgery during the six months to a year following the surgical event. The Double ABCX model of Family Adjustment and Adaptation by McCubbin and Patterson (1983) provides an organizing framework for the study. The Family Crisis Oriented Personal Evaluation Scale (F-COPES) by McCubbin, Olson, and Larsen (1991) was utilized to determine family coping behaviors. The results of the study suggests the spouses and the children of coronary bypass graft clients utilized a variety of coping strategies to deal with the stressors of the surgery. Both internal and external coping patterns were utilized to assist the spouses and the children in adapting to the stressors of the surgical event. Discussion a complex system which provides The family is physical, social, .notional, and psychological benefits 103 104 and needs to individuals within the family unit (Danielson, Hamel-Bissel, & Winstead-Fry, 1993). The structure and function of the family is established by successfully assigning and performing roles to individual members. All members are interconnected and interdependent upon one another. The roles within the family unit evolve as individual members mature and change with life experiences. illness is an example of a life experience which requires individuals to make changes within their lives. These changes affect the entire system since the individuals may need to relinquish some of their responsibilities and roles within the family. Family members must be flexible to take on more responsibilities and assume different roles in order to continue usual family functioning (Maynard, 1993). Assuming the added responsibilities and roles due to illness of a family member may cause stress within the family. Coronary artery disease is an example of a stress­ producing illness which not only affects individuals but The stress of the also impacts upon the entire family. affected individuals require illness is compounded if the to treat the effects coronary artery bypass graft surgery of the disease. Coronary artery bypass graft surgery can within families and drastically increase the stress 105 disrupt routine functions, Assessment of the families' coping skills, problem -solving abilities, and their needs is an essential step to understanding how families will cope with the stress of the surgery. It was the purpose of this study to assess the coping abilities and adaptation process of families of coronary artery bypass graft clients during the six to twelve months following CABG surgery. Although the research population was small and limited to one agency, conclusions can be drawn from this quantitative study, which may provide direction to nurses in assisting families of CABG clients coping with the stressors during the six to twelve months following surgery. The study revealed the adult children and spouses of coronary bypass graft clients used a variety of coping patterns and behaviors during the six to twelve months following a family member's coronary bypass graft surgery. These findings were based on the coping patterns identified by the Family Crisis Oriented Personal Evaluation Scale (FThe Family COPES) (McCubbin, Olson, & Larsen, 1991). Crisis Oriented Personal Evaluation Scale (F-COPES) is an assessment tool used to identify the coping patterns and and children of behaviors utilized by the spouses graft clients. The instrument coronary artery bypass and behaviors which focus contains thirty coping patterns 106 on the adaptation portion of the Double ABCX model of Family Adjustment and Adaptation by McCubbin and Patterson (1983). The instrument contains coping patterns which are based on the two levels of interaction as outlined in the Double ABCX Model Family Adjustment and Adaptation by McCubbin and Patterson (1983): (1) individual to family system or how the family internally handles difficult situations between its members; and (2) family to social environment, or how the family externally handles problems that arise from outside the family (McCubbin and Patterson, 1983). By utilizing a variety of coping patterns the spouses and children were able to gain support from a variety of resources to help them deal with the stressors during the six to twelve months following the surgical event. A variety of resources available to the spouses and children may have assisted them with maintaining homeostasis within the family unit. This was consistent with the Double ABCX Model of Family Adjustment and hypothesized that families using Adaptation (1983) which behaviors obtained from the more of coping patterns or would adapt more successfully two levels of interactions situations (McCubbin and Patterson, 1983). to stressful number of coping patterns Yet simply, determining the families will cope with stress. cannot predict how 107 Assessing the number of copmg patterns identified by families will give an indication of the wide variety of coping patterns and behaviors from which they have chosen and therefore is a measure of potential flexibility in meeting the demands of the stressor. Thus they will have a greater probability for successful adaptation to the stressor. A second finding in the study is spouses and children coped similarly during the six to twelve months following the surgical event. This is evident by similar F-COPES percentage of agreement for both groups. Because there may be parent-children combinations who responded to the questionnaire, coincidences in similar coping patterns may not be accidental. Parent-child combinations would have similar value systems, beliefs, and coping methods and resources, coping abilities would be similar, Therefore, their However, the data that were gathered provides no way of linking a specific parent and child. A third finding in this study is the high percentage of agreement by the spouses and the children to the items identified on the Family Oriented Personal Evaluation Scale (F-COPES) (McCubbin, Olson, & Larsen, 1991), subcategories of relating to internal coping patterns in problem solving. Reframing reframing and confid®nce 108 reflected the spouses and the children's ability to redefine the situation positively. The spouses and the children in this study agreed that they responded to difficult or stressful situations by utilizing their internal and external strengths and coping abilities to direct their energies at reducing or eliminating the stressor. They accomplished this by redefining the situation in a more positive way or accepting it as a part of life. Both groups also had the confidence in their problem solving abilities to face the challenges of the CABG surgery. They knew they had the strength to solve any major problems encountered. Thus they were able to effectively manage the stressor of the surgery. Confidence in problem solving abilities may also have reduced the stress and anxiety associated with coronary bypass graft surgery, as evidenced by the high percentage of agreement by spouses and children in this area. Confidence in problem-solving reflected the confidence in their abilities to spouses ' and children's effectively meet the demands of the stressors associated with coronary bypass graft surgery. inner strength and power They relied on their to face the challenges of the surgery. A fourth finding of the study is the high percentage of agreement for three of the five external coping 109 patterns subcategories friends, church/religious resources and community resources. External coping patterns are resources the family uses outside the immediate family unit (McCubbin, Olson, & Larsen, 1991) . The spouses and children viewed friends as a source of support and encouragement and with whom they could talk over the stressful event and obtain advice from outside the family. Friends may have provided many benefits to the spouses and children: emotional support, a feeling that they are cared for, esteem building, and a feeling that they are respected and valued (Cobb,1976). This mutual trust relationship helped to reduce the stress associated with the coronary bypass graft surgery. Community resources and support were used by the spouses and the children in this study to cope with the stressors associated with the surgery. Resources and support include a range of services, such as medical, community, or professional counseling services. Medical resources (such as talking with the physician) were very Studies have important to the spouses ■and children. for information regarding their listed the families' need of the top priorities during the loved ones as being one (Leske, 1986; Molter,1979). The illness experience the condition, the prognosis, and families needed to know loved ones (Leske, 1986). Based the progression of their 110 on that information, th^v = y are able to make decisions regarding the long term care of the clients and any changes in roles or responsibilities needed within the family. The spouses and children in this study agreed that seeking information from physicians was an important source of support for them. The role of the nurse may be in facilitating a dialogue between the physician and the families. In addition to this facilitating role, the nurse is also a teacher, a communicator, and a patient care manager. Also included in External Coping Patterns subcategory " Community Resources" is the use of A community agency from which the community agencies. study drew participants from was the phase II Cardiac This program offered classes Rehabilitation Program. regarding lifestyle changes and risk factor modification. Clients and their families were encouraged to attend these classes. Informally, these classes were a source of support and encouragement. were able to meet others compare their progress The clients and families with similar situations and and share their concerns. This helped the clients and their informal support may have associated with coronary families cope with the stressors bypass graft surgery. The subcategory "Church Resources is also contained Ill in the External Coping Patterns subcategory community resources. Church resources had the highest percentage of agreement for spouses and children. Both groups agreed that their religious convictions helped them cope with the stressors associated with the coronary bypass graft surgery. This belief in religion or spirituality may have offered the spouses and children a sense of hope, gave them the confidence in their problem solving abilities, and enabled them to move forward and confront the stressors associated with the surgery. Spirituality is often overlooked as an area for intervention by nurses because these beliefs are deemed personal and private. Spirituality may be an area where nurses may explore with families its significance in family coping. If families deem it a significant source of potential comfort, then the nurse may encourage, and if needed, facilitate spiritual interventions in the coping process. The six months to a year following the coronary bypass graft surgery may still be a critical and and families. The event vulnerable time for clients undergo sudden and often causes clients and families to the demands and stressors drastic changes because of It is important that health care encountered. the families' coping patterns and professionals assess 112 use this knowledge to determine strategies for intervention . By assessing coping patterns and gaining an insight into family functioning, nurses can gain insight into what is important to individual families. Establishing harmony between the old and new patterns of coping is a process occurring over time. Families may struggle with fitting these new patterns of coping into their already well-developed coping systems because change is required as they assimilate the new coping patterns. It is at this point that families are most vulnerable. Nurses must be aware of each family's vulnerability and assist them in coping with stressors or demands they face. Change is necessary within the family system for them to adapt to the stressors of the surgery. These changes should be made in an environment which promotes stability and predictability (Danielson, Hamel- Bissel, & Winstead-Fry, 1993). The effectiveness of the new coping patterns depends on the meaning each family attaches to them. Coping and problem solving may be directed at reducing or eliminating stress, acquiring new demands of the system while resources and balancing the External resources from the maintaining integrity. health care professionals, can community, including maintain harmony and cohesiveness in the assist families 113 adaptation process. Unfortunately, community agencies dealing specifically with coronary bypass graft clients and their families are limited in some communities. Yet a cardiac rehabilitation program with a focus of assisting clients with initiating and continuing an exercise regime and informational sessions relating to dietary restrictions, risk factors modification, and lifestyle changes seems critical. Family support sessions may also benefit many families. Support sessions specifically for families of CABG clients would enable the family to tap into new coping resources thus assisting them in adaptation process. Conclusion Data about the coping patterns of the spouses and adult children of coronary bypass graft surgical clients suggested the following conclusions: 1. 2. 3. Spouses Spouses and children of CABG clients in the six months to twelve months following the surgical event used a variety of coping patterns to cope with the stressors associated with the event. The spouses and children of coronary artery bypass graft clients' relied on . internal coping patterns such as reframing tnd having confidence in their problem solving abilities to cope with the stress of the event. The .nnnses spouses and children of coronary artery bypass graft clients sought encouragement 114 and r--- • from friends t dealing with the stressorsto assist them in j associated with the event. 4. Spouses and children of CABG clients t^zed community resources such as an established cardiac rehabilitation program and information obtained from their p ysician to cope with the surgical event. 5. The spouses and children of coronary artery bypass graft clients relied on their beliefs in religion or a higher power to cope with the stressors of coronary bypass graft surgeries. Recommendations Based on the results of this research study, the following recommendations are made: 1. This study be replicated using a larger sample and not limited to one agency. 2. The guestionnaire be expanded to include: a Information about the marital status, the number of children, and employment status of the adult children and spouses, as well as to account for parent-child combinations. b. Information regarding the a9e/ employment status, and the number of children under the age of 18 years of the CABG client's spouse. r 3. Information regarding the postoperative recovery of the CABG clients; i.e. were there any complications relating to the surgery? ThiA study should be replicated using the This stuay oriented Personal Evaluation McSbbln, Olson, and Larsen a. a. adjunct to a tool which would elicit 115 information about how each group coped with the surgical event. 4. Alter the Likert scale on the F-COPES to a 4 point scale (l=strongly disagree, 2=disagree, 3= agree, 4=strongly agree). Implications for Nursing The results of this study reinforces this author's belief that nurses, as part of the health care team, have an important role with families in the recovery phase of coronary bypass graft clients. The coronary bypass graft surgery not only affects clients but entire families. Families are often forgotten once the coronary bypass graft clients are discharged from the hospital. Many established programs exist for CABG clients, but many do not include family members. Families need continued support both emotionally and educationally to help them during the recovery process. In order to provide holistic care for clients, families met. needs must also be Meeting these needs will enable the family members to maintain homeostasis and reestablish family cohesiveness. By assessing the coping patterns of families, the nurse can gain an understanding of family . . • recovery and assist them in coping behavior in illness that are encountered with the stressors and role changes with coronary bypass surgery. References Alonzo, A. (1986). The impact of family and lay others care seeking during life threatening episodes of suggested coronary artery disease. Medicine, Social Science 22(12), 1297-1311. American Heart Association, (1994). Dallas, Texas: Heart Facts 1994. National Center for Heart Disease. Artinian, N.T. (1989). Family member perceptions of a cardiac surgical event. Focus on Critical Care, 116(4), 301-308. Baker, J.E. (1990 ) . Family adaptation when one member has a head injury. Journal of Neuroscience Nursing, 22(4), 232-237. 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McCubbin, M.B. Sussman, and J.M. Patterson (Eds). Social stress and the family advances and developments in family stress theory a 121 research (pp. 7-37). Meisel, M. (1991) . New York: Haworth Press. Psychosocial implications in the of critically in patient and family . Dolan (Ed.). Critical care In J.T. ——nursing clinical management through the nursing process (pp. 20-25). Philadelphia: F.A. Davis Company. Millar, B. (1989). Critical support in critical care. Nursing Times, 85(16), 31-33. Molter, N.C. (1979). ill patients: Needs of relatives of critically A descriptive study. Heart & Lung, 8(2), 332-339. Narayan, S.M., and Joslin, D. (1980). intervention: Crisis theory and A critique of the medical model and proposal of a holistic nursing model. Aspen: Aspen Systems Corporation. Nolan M.T., Cuppies S.A., Brown M.M., Pierce, L., Lepley D., & Ohler L. (1992 ) . Perceived stress and coping strategies among families of cardiac transplant candidates during the organ waiting period. Heart and Lum, 21(6), 540-547. Norris J., Kunes-Connell M., Stockard, S., Ehrhard Mental health P.M., & Newton G.R. (1987). continuum of care. psychiatric nursing a Inc. Philadelphia: Wiley & Sons, Family care in the O'Keefe B., & Gillis, C. (1988). 122 coronary care unit: Analysis of clinical nurse specialist intervention. Heart & Lung, 17(2), 190-198. Raleigh, E.H., Lepczyk M., & Rowley, c. (1990). Significant others benefit information. from preoperative Journal of Advanced Nursing, 15, 941- 945. Robinson, P.D., Roe, H., & Boys, L.J. (1987). of hospitals on family care. The focus Health Values, 11(2), 19-24. Rolland, J. S. (1990). Anticipatory loss: systems developmental framework. A family Family Process, 29(3), 229-224. Stanley, M.J., & Frantz, R.A. (1988). Adjustment problems of spouses of patients undergoing coronary artery bypass surgery during early convalescence. Heart and Lung, 17(6), 677-782. Williams, F. (1974). The crisis of hospitalization. Nursing Clinics. of North America, 9.(1), 37-45. APPENDICES Appendix A 123 EDINBORO UNIVERSITY OF PENNSYLVANIA October 14, 1993 Department of Nursing Edinboro, PA 16444 (814) 732-2421 Dr. H. McCubbin 1300 Linden Drive University of Wisconsin Madison, WI 53706 Dear Dr. McCubbin: I am enrolled as a graduate student in the Master of Science of Nursing program at Edinboro University of Pennsylvania. I am writing to ask permission to use your Family Crisis Oriented Personal Scales (F-COPES) and your framework of T-Double ABCX Model of Family Adjustments and Adaptation in the preparation and implementation of a master in nursing thesis requirement. Any information and/or suggestions that you may have about the application and implementation of the T-Double ABCX Model of Family Adjustments and Adaptation would be greatly appreciated. I await your reply and thank you for your time. Sincerely, Mary Alice Nash B.S.N., R.N. Master candidate in the Science in Nursing A member of the State System of Higher Education _ Appendix!B UNIVERSITY of WISCONSIN M A D I S 1 o I 124 n I i November 9, 1993 Mary Alice Nash 917 West 30 Street Erie, PA 16508 Dear Ms. Nash: I am pleased to give you my permission to use the Double ABCX Model in your work. When using the Double ABCX model the correct reference is McCubbin, H.I. and J. Patterson (1983). “The Family Stress Process: The Double ABCX Model of Adjustment and Adaptation.” In H. I. McCubbin , M.B. Sussman, and J.M. Patterson (Eds.) Advances and Developments in Family Stress Theory and Research. New York: Haworth Press. If I comd, of any further assistance to you, please let me know. Sincerely, Iton I. McCubbin HIM/kme Enclosures Office of the Dean School of Family Resources and Consumer Sciences 1300 Linden Drive Madison, Wisconsin 53706-1575 608/262-4847 FAX: 608/262-5335 125 Appendix C EDINBORO UNIVERSITY OF PENNSYLVANIA Department of Nursing Edinboro, PA 16444 (814) 732-2421 March 6, 1994 Dr. H. McCubbin 1300 Linden Drive University of Wisconsin Madison, WI 53706 I Dear Dr. McCubbin, I* I wrote to you last November asking permission to use your Family Crisis Oriented Personal Scales (F-COPES) and your framework of Double ABCX Model of Family Adjustments and Adaptation in preparation and implementation of a master in Nursing thesis requirement. I ) I If you recall I* am currently a student at Edinboro University of Pennsylvania. i have received your permission to use the Double ABCX Model in my thesis, I am writing to you now requesting permission to use the Family Crisis Oriented Personal Scales (F-COPES) in my research study.' For your convenience I have enclosed a self addressed envelope. I await your reply and. thank you for your time. Sincerely, I I Mary Alice Nash, B.S.N., R.N. Master in Nursing Candidate A member of the State System of Higher Education Appendix p U-N I v e r sTt y o f WISCONSIN A D I S O N 126 April 25, 1994 Maiy Alice Nash Edinboro University Department of Nursing Edinboro, PA 16444 Dear Ms. Nash: I am pleased to give you my permission to use the F-COPES: Family-Crisis Oriented Personal Evaluation Scales (McCubbin, H., Olson, & D., Larsen, A.) instrument. We have a policy to charge $5.00 (one time charge only) per instrument to individuals who seek permission. We apologize for..this necessity. We also ask that you please fill out the enclosed abstract form and return it to this office. The manual, Family Assessment Inventories for Research and Practice, Second Edition should be cited when using the instrument. The publication is currently out of print while a new edition is being compiled. However, we are making packets available for the instrument including scoring, psychometric data and theoretical information at a cost of $15.00 per packet. It is not advisable to use the Family Inventories manual by David Olson to score the instrument due to errors in its scoring section. A sample copy of the instrument is enclosed. Additional copies can be obtained at this address for 10 cents each. When large quantities are requested, the cost of postage is also added to the order. If I could be of any further assistance to you, please let me know. Sincere™ H; ilfon I. McCubbin te Enclosures Office of the Dean School of Family Resources and Consumer Sciences 1300 Linden Drive Madison. Wisconsin 53706-1 575 PAY- Ano/icn coor Appendix- e << OF fAMILY STRESS COPING ANO HEALTH PROJECT 1300 Linden Drive iinivtrtlty ot Wltconeln-U&dlton WI53706 Farn',y form pr» OT o> c 2? < >- < © •q c “ o o C o zZ z 3) 1 2 3 4 5 2 Seeking encouragement and support from friends 1 2 3 4 5 3 Knowing we have the power to solve major problems 1 2 3 4 5 4 Seeking information and advice from persons in other families who have faced the same or similar problems---------- - --------------- 1 2 3 4 5 5 Seeking advice from relatives (grandparents, etc.) 1 2 3 4 5 6 Seeking assistance from community agencies and programs designed to help families in our situation 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 Sharing our difficulties with relatives 7 Knowing that we have the strength within our own family to solve our prob1ems ___________ ________ ___________ _8 Receiving gifts and favors from neighbors (e.g.food, taking in mail, etc.) 9 Seeking information and advice from the family doctor 10 Asking neighbors for favors and assistance ------------ 128 © o s Q >. O> o WHEN WE FACE PROBLEMS OR DIFFICULTIES IN OUR FAMILY, WE RESPOND BY: >» S © ii o o o Z co 2? < «5 s© «« 55 T) « w © < c 2 11 Facing the problems "head-on" and trying to get solution right away 1 2 3 4 5 12 Watching television 1 2 3 4 5 13 Showing that we are strong 1 2 3 4 5 14 Attending church services 1 2 3 4 5 15 Accepting stressful events as a fact of life 1 2 2 4 2 16 Sharing concerns with close friends________ 1 2 3 4 5 17 Knowing luck plays a big part in how well we are able to solve family problems_________________ __ ________________ 1 2 3 4 5 18 Exercising with friends to stay fit and reduce tension 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 2 3 4 5 1 2 3 4 5 X 2 1 A 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 19 Accepting that difficulties occur unexpectedly 20 Doing things with relatives (get-togethers, dinners, etc.) 21 Seeking professional counseling and help for family difficulties 22 Believing we can handle our own problems 23 Participating in church activities Defining the family problem in a more.positive way so that we do not become too discouraged about problems we face 25 Asking relatives how they feel we will have difficulty 24 26 Feeling that no matter what we do to prepare. handling problems___ 27 Seeking advice from a minister 28 Believing if we wait long enough 29 Sharing problems with neighbors 30 Having faith in God — 129 Appendix F Dear , I am ra nursing student at Edinboro University. As part of my graduate studies -------at Edinboro University, x QU1 I am conducting a study on the coping behaviors of family members = of coronary artery bypass graft patients. My My purpose in writing to you, is to ask if you are willing to assist me in this study. I am requesting information from family members of coronary artery bypass graft patients who have participated in the cardiac rehabilitation program offered by the Diagnostic and Cardiac Rehabilitation Program. Your husband recently underwent coronary artery bypass graft surgery and participated in the cardiac rehabilitation program. I would appreciate that you assist me in my study by completing the yellow questionnaire. I also ask that you assist me by forwarding the green questionnaire to your children who are over the age of 18 years. The children can be sons, daughters, sons-in-laws, and daughters-in-laws. By completing and returning the questionnaire, I hope to gain more information on how families cope after coronary bypass graft surgery. The results in return will assist nurses in helping other coronary artery bypass graft families cope with the event. Enclosed is a consent form and a questionnaire about some of the coping strategies used by families during times of part in the study will take stress..Yourfamily's --approximately 30 minutes of their time, to complete the questionnaire. Your family's privacy will be protected. Their identity and yours will be absolutely confidential. Neither their name nor yours, will appear on the questionnaire or in the report. 130 If your family is willing to participate, have them complete the enclosed questionnaire and return it by mail in the postage paid envelope by April 8, 1994. If you need any extra green forms for family members please feel free to contact me and I will forward the forms to you. Thank You for your cooperation. Sincerely, Mary Alice Nash, BSN, RN , Master candidate in the Science in Nursing 131 Appendix G -Consent Form signing this document, I am giving my consent to Participate in a research study by a graduate nursing student in Pennsylvania. I understand that I will be part of a research study that involves the problem­ solving and behavioral strategies utilized by me as a family member following coronary bypass graft surgery of a family member. This study will provide guidance to nursing in assisting families of coronary bypass graft surgery patients deal with the stressors encountered in the recovery process. My participation in this study is granted freely, I understand that participation in this study is entirely voluntary, and that even after the research begins I can refuse to participate and terminate my participation at any point. I have been told that the results of this study will not be given to anyone else and no reports from this study will ever identify me in any way. I have also been informed that my participation of refusal to participate will have no effect on the services that I or any member of my family may receive from this program. This study will help nursing education in better preparing to meet family needs in the six to twelve months following coronary bypass surgery of a family member. However, I will receive no direct benefit as a result of this participation. I understand that the results of this research study will be given to me if I ask for them. Respondent's Signature Date Researcher's Signature Date ( 132 Appendix H Dear Last week a questionnaire was mailed to you seeking your opinions about coping behaviors of families. If you have already completed and returned it to me, please accept my sincere thanks. If not, please do so today. Because it has been sent to a small sample of families, it is extremely important that yours also be included in the study if the results are to accurately represent the families of open heart patients. The yellow or husband green ones daughters, questionnaire is to be completed by the wife of the coronary bypass graft patient and the are to be filled out by the family members sons, daughter-in-laws, and son-in-laws. If by some chance you did not receive the questionnaire, or it got misplaced, please call me and I will get another questionnaire in the mail to you or your family members today. Sincerely, Master^candidate in the Science in Nursing HDpendix I 133 Spouses distribution and taean scores ipr the Family Crisis Oriented Personal Scales n=16 SD ND NA/ND HA 1. Sharing our difficulties with relatives 3 1 1 6 5 3.80 2. Seeking encouragement and support from friends 1 2 3 6 4 3.72 3. Knowing we have the power to solve major problems 0 0 2 8 6 4.71 4, Seeking information and advice from persons in other families who have faced the same or similar problems 1 2 2 7 4 3.93 5, Seeking advice from relatives (grandparents, etc.) 5 4 3 2 2 2.66 6. Seeking assistance from community agencies and programs designed to help families in our situation 4 0 3 4 5 3.60 7. Knowing that we have the strength within our own family to solve our problens 0 0 0 6 10 4.93 8. Receiving gifts and favors froe neighbors (e.g. food, taking mail, etc.) 4 0 3 8 1 3.33 9. Seeking information and advice froo the family doctor 1 0 0 5 10 4.73 10. Asking neighbors for favors and assistance 5 2 4 5 0 2.73 11. Facing the problems "head-on” and trying to get solution right away 0 0 1 12. Watching television 8 1 5 0 2 2.33 13. Showing that we are strong 0 0 4 6 6 4.40 14. Attending church services 1 0 1 3 11 4.57 15. Accepting stressful events as a fact of life 1 0 0 9 6 4.53 16. Sharing concerns with close friends 2 2 2 7 3 3.67 17. Knowing luck plays a big part in how well we are able to solve family problems 6 3 5 1 1 2.40 3D=strongly disagree, Moderately agree, NA/ND= neither agree no disagree, MA=fioderately agree, SA= strongly agree 3 SA Mean 12 5.00 134 Appendix I (con't) SD HD NA/ND MA SA Mean 18. Exercising with friends to stay fit and reduce tension 2 1 6 5 2 3.46 19. Accepting that difficulties occur unexpectedly 0 0 0 8 8 4.80 20. Doing things with relatives (get-together, dinners, etc,) 1 0 4 4 7 4.26 21, Seeking professional counseling and help for family differences 3 0 4 6 3 3.60 22. Believing we can handle our own problems 0 0 3 7 6 4.46 23. Participating in church activities 2 1 0 6 7 4.20 24. Defining the family problem in a more positive way so that we do not become too discouraged 0 0 0 6 10 4.93 25. Asking relatives how they feel about problems we face 4 3 3 4 2 3.00 26. Feeling that no matter what we do to prepare, we will have difficulty handling problems 8 3 3 1 1 2.13 27. Seeking advice from a minister 2 3 3 5 3 3.46 28. Believing if we wait long enough, the problem will go away 13 1 2 0 0 1.40 29. Sharing problems with neighbors 10 1 2 2 1 2.06 1 0 1 1 13 4.86 30. Having faith in GOD SD=strongly disagree, HD=ioderately agree, NA/ND= neither agree no disagree. HA=iioderately agree, SA= strongly agree Appendix J 135 Adult Children distribution and mean scores for the Fatally Crisis Oriented Personal Scales n=28 r SD HD NA/ND MA SA Mean 1. Sharing our difficulties with relatives 2 6 5 11 4 6.20 2. Seeking encouragesent and support froa friends 2 2 5 15 4 7.13 3. Knowing we have the power to solve major problems 1 0 2 13 9 7.53 4. Seeking information and advice from persons in other families who have faced the same or similar problems 1 2 10 12 3 6.53 5. Seeking advice from relatives (grandparents, etc.) 5 3 7 9 4 5.86 6. Seeking assistance froo community agencies and programs designed to help families in our situation 6 5 7 4 6 5.53 7, Knowing that we have the strength within our own family to solve our problems 1 1 1 13 12 7.86 8. Receiving gifts and favors fro® neighbors (e.g. food, taking nail, etc.) 6 3 8 9 2 5.47 9. Seeking information and advice from the family doctor 2 3 2 8 13 7.40 10. Asking neighbors for favors and assistance 9 4 8 6 1 4.67 11. Facing the problems Bhead-onu and trying to get solution right away 0 2 2 14 10 7.73 13 9 4 2 0 3.40 13. Showing that we are strong 3 2 8 10 5 6.40 14. Attending church services 2 1 4 9 12 7.47 15. Accepting stressful events as a fact of life 1 1 7 12 7 7.13 with close friends 16. Sharing concerns 0 2 7 15 4 7.00 14 7 5 1 1 3.47 12. Watching television 17. Knowing luck plays a big part in how well we are able to solve family problems nqly disagree, MD=moderately agree, NA/ND= neither agree nor disagree, Moderately agree, SA= strongly agree 136 Appendix J (con'tj SD ND NA/ND MA SA Mean 18, Exercising with friends to stay fit and reduce tension 1 5 10 9 3 6.13 19, Accepting that difficulties occur unexpectedly 0 0 2 17 8 7,87 20. Doing things with relatives (get-together, dinners, etc.) 2 3 5 5 1 6.13 21. Seeking professional counseling and help for family differences 5 2 7 7 7 6.20 22. Believing we can handle our own problems 0 2 8 12 5 7.10 23. Participating in church activities 2 4 8 7 7 6.46 24. Defining the family problem in a more positive way so that we do not become too discouraged 0 1 5 14 25. Asking relatives how they feel about problems we face 7 7 6 7 1 4.80 10 3 8 6 1 4.60 6 2 9 7 4 5.66 28. Believing if we wait long enough, the problem will go away 18 7 2 1 0 2.80 29. Sharing problems with neighbors 13 6 6 3 0 3.66 2 0 3 4 19 8.13 26. Feeling that no matter what we do to prepare, we will have difficulty handling problems 27. Seeking advice from a minister 30. Having faith in SOD SD=strongly disagree, MD=moderately agree, NA/ND= neither agree no disagree, MA=aoderately agree, SA= strongly agree 8 7.53 Appendix K 137 Spouses Percentage Distribution for the Family Crisis Oriented Personal Scales n=16 SD HD NA/ND 19'Z 67 67 38Z 317, 2. Seeking encouragement and support from friends 67. 137. 197 387 257 3, Knowing we have the power to solve major problems 07 07 137 507. 387. 4. Seeking information and advice from persons in other families who have faced the same or similar problems 67. 137 137 447. 257 1. Sharing our difficulties with relatives MA SA 5. Seeking advice from relatives (grandparents, etc.) 317 257 197 137. 137. 6. Seeking assistance from community agencies and programs designed to help families in our situation 257. 07. 197 257 317 07 07 07 387. 637 8. Receiving gifts and favors from neighbors (e.g. food, taking mail, etc.) 257. 07 197 507. 67 9. Seeking information and advice from the family doctor 67 07 07 317. 637. 317 137. 257 11, Facing the problems Bhead-onB and trying to get solution right away 07. 07 67 197. 757 12, Watching television 507 67 317 07 137 13, Showing that we are strong 07 07 257 387, 387 14. Attending church services 67 07 67 137 697 15, Accepting stressful events as a fact of life 67. 07 07 567 387. with close friends 16. Sharing concerns 137. 137 137 447 197 ^TT^TTluck plays a big part in how well we are able to solve family problems 387 197 317 67. 7. Knowing that we have the strength within our own family to solve our problems 10. Asking neighbors for favors and assistance ----- idisagree, MD=moderately agree, NA/ND= neither agree no disagree, ^"aodeVtely agree, SA= strongly agree 317. 07 67. 138 Appendix X (con't) SD HD NA/ND 18. Exercising with friends to stay fit and reduce tension 137. 6X 38% 317. 13X 19. Accepting that difficulties occur unexpectedly OX OX OX 507. 50X 20. Doing things with relatives (get-together, dinners, etc.) 67. OX 257. 257. 447. 19% OX 25’. 38X 197. OX 07. 19X 447. 3BX 13X 6X OX 387. 447. OX OX OX 387. 637. 25. Asking relatives how they feel about problems we face 257. 19X 19X 257. 13X 26. Feeling that no matter what we do to prepare, we will have difficulty handling problems 507. 19X 197. 67. 27. Seeking advice fros a minister 13X 197. 19X 317. 19X 28. Believing if we wait long enough, the problem will go away 81X 6X 13X 07. OX 29. Sharing problems with neighbors 637. 6X 137. 137. 6X 6X 07. 6X 21. Seeking professional counseling and help for family differences 22. Believing we can handle our own problems 23. Participating in church activities 24. Defining the family problem in a more positive way so that we do not become too discouraged 30. Having faith in GOD SD=strongly disagree, MD=moderately agree, NA/ND= neither agree no disagree, HA=moderately agree, SA= strongly agree HA SA 67. 67. SIX Appendix L Adult Children Percentage Distribution 139 for the Family Crisis Oriented Personal Sraies n=28 SD ND NA/ND KA | SA 1. Sharing our difficulties with relatives 77 217 187 39Z 147 2, Seeking encouragement and support from friends 77. 7Z 187 547. 147 3. Knowing we have the power to solve major problems 47. 07 7Z 467. 327 4. Seeking information and advice fros persons in other families who have faced the same or sisilar problems 47. 77 367 437 117 5. Seeking advice from relatives (grandparents, etc.) 18Z 117 257 327 147. 6. Seeking assistance froa cosaunity agencies and prograss designed to help families in our situation 217 187 257 147. 217 47 47 47 467 437 8. Receiving gifts and favors fro® neighbors (e.g, food, taking mail, etc.) 217. 117 297 9. Seeking infonaation and advice from the fafflily doctor 77 117 77 327. 147 07 77 12. Watching television 467 13. Showing that we are strong 7. Knowing that we have the strength within our own family to solve our problems 10. Asking neighbors for favors and assistance 327 77 297 467 297 | 217 471 77 I 507 367. 327. 147 77 07 117 77 297 14, Attending church services 77 47 15, Accepting stressful events as a fact of life 47 47. 257 437. 257 16, Sharing concerns with close friends 0Z 77 257 547. 147 I 507 257 11. Facing the problems l’head-anH and trying to get solution right away 17. Knowing luck plays a big part in how well we are able to solve faaily problems ' SD=strongly Moderately agree, MD= neither aoree nnr HA=moderatelydisagree, agree, SA= strongly agree 9 ’ lsa9'BBJ 147 367 187 327. 437 187 ! 47 47 140 Appendix L (con't) SD ND NA/ND MA I SA 18. Exercising with friends to stay fit and reduce tension 47. 18X 367 327. 117 19. Accepting that difficulties occur unexpectedly 07. 07 77 617. 297 20. Doing things with relatives (get-together, dinners, etc.) 77 117 187 187 21. Seeking professional counseling and help for family differences 187 77 257 257 257 22. Believing we can handle our own problems 07 77 297. 437 187 23. Participating in church activities 77 147 297 257 257 24. Defining the family problem in a more positive way so that we do not become too discouraged 07 47 187 507. 297 25. Asking relatives how they feel about problems we face 257. 257 217 257. 47 26. Feeling that no matter what we do to prepare, we will have difficulty handling problems 367 117 297 217 47 27. Seeking advice from a minister 217 77 327 257. 147. 28. Believing if we wait long enough, the problem will go away 647 257 77 47 07 29. Sharing problems with neighbors 467 217 217 117 07 77 07 117 147. 687 30. Having faith in GOD SD=strongly disagree, MD=moderately agree, NA/ND= neither agree no disagree, MA=soderately agree, SA= strongly agree 47